If you went to the web page, and read about the illness you noticed it is also called genetic emphysema, it also causes lung cancer in smokers and non smokers, I am a lifetime NON SMOKER and drinker, it causes cirrosis of the lives in alcholics or non alcholica, pancreatic and liver cancer. 10% of our newborns born with this have to have a liver transplant before the age of 3 or 4 A lady named Betty in columbus, GA contacted me, and told me her grandmother was Nannie Missouri Woods, well I knew my gg grandmother was clarissa woods, and learned they were sisters. I had lung reduction surgery in 95, Betty also had it done in Emory, the same year, even tho she was a little older than I the surgery did not help her, and I told her I felt she most likely was a carrier of this illness. I have been able so far to find about 128 people my maternal and paternal lines who died very young, Clarrisa raised the children of Mary Strong and Sterling Jenkins. At 05:24 PM 10/28/2000 -0700, Roderiques wrote: >Lynda - >Interesting that you have been able to trace the genetics of this line. >What challenges and successes have you had in this type of research. > My mother died in 88 from severe COPD(chronic Pulonary disease) she was 74, her 3 sibblings were all dead by the age of 50 from uncontrolable asthma. My father and his father both died of liver failure, my grandfather was 70, my dad was 56, so I began looking for death certificates, which I was able to find through NY and MS, where both families were, my maternal g grandfather came to the USA from Germany in 1868 through NY and raised his children there one of which was my maternal grandmother who died at the age of 50 also. My g grandfather it noted on his death certificate, Chronic Bronchitis,Duration of this ilness, said over 50 years, its Scandanivan European background, my moms maternam folks were both german. The other side from Scottland, My paternamfamily is from England, Both Paternal lines, so I would up with both bad Genes. And life goes on. >Albinism, also a genetic condition (although thank goodness not a health >endangering one in most cases!) is in my NC Woods line (primarily Orange >County from 1800-present). As the gene must be present in both parents to >manifest, we know it is also in my maternal line, but I haven't a clue if it >is in the Morton or Preddy branch. Regardless, I am interested in what >tools you have found that help in researching genetic conditions in general. > Deaths of family members, since being a non smoker and diagnoised at the age of 48, it was a shock, our children are both carriers. We have two grandchildren. I make complete copies of all my medical records. And now we know there are over 5000 rare diseases that effect over 20 million people. And more diseases and beinging learned about each day. You educate yourself, your doctors, and the medical community. Ilive in the south, Alabama, was born in Buffalo, raised in MS, settled in Alabama. One in every 4 people are carriers of this illness. Just like sickle cell doesnt effect the white population, alpha as far as we know does not effect the black population, but that I believe is about to change in the years to come. NORD which deals with rare illnesses was one step, and NIH played a wonderful role in early protocals of the only medication available for treatment, Prolastin which is over $100,000.00 dollars a year. There is no cure. life goes on and so does education, I am not an expert, but I have learned a lot, there is also a form of rehumatoid arthritis, and pannaculitias, a skin disease associated with alpha1. Thanks for asking http://www.alpha1.org http://www.alphaone.org http://www.alpha2alpha.org God bless, Lynda >-----Original Message----- >From: Lynda Lindsey [mailto:linda1@zebra.net] >Sent: Friday, October 27, 2000 11:21 AM >To: WOODS-L@rootsweb.com >Subject: Re: [WOODS-L] WOODS / WOOD twins > > >My brother in law, whose name is Ronnie Woods, has turned out to also be >related to me, his gg granfather and my gg grandmother were sibblings, >children of John Woods in copiah county, MS in ghe 1850 on through today > >I can tell you that there is a genetic illness in the family > >http://www.alpha1.org > >there are many twins in his family he has two sisters who are twins, this >disease is of Scandanian European background, and there is no cure for >this, this is what started my quest to learn where my famaily came from. > >Though the years, I have also run into other Woods Kin who have emphysema, >not know that the genetic emphysema is the genetic illness I am m entioning >here. > >my GEDCOM in on line, and If I can help anyone > >let me know,. > >Lynda Lindsey >transcriber of the 1850 copiah county ms census and now transcribing the >1830/40 copiah county ms census > >At 08:34 AM 10/27/2000 EDT, GabbyCrick@aol.com wrote: >>I am looking for twins with the Woods Wood surname born around 1905-1906. I >>am sure that their mother died young perhaps before 1916. They could have >>been with their father John if he remarried or he may have given them up >for >>adoption. >> >>Would love hearing from all of those with twins in their line. Have been >>working on this family for almost 15 years now and know how hard it is >>locating information on such a common surname but must try every avenue. >> >>Thanks for your time. >> >>Sincerely, >> >>Patti Woods Crick >>gabbycrick@aol.com >> >