This is a Message Board Post that is gatewayed to this mailing list. Classification: Query Message Board URL: http://boards.ancestry.com/mbexec/msg/an/QOz.2ACEB/736.1 Message Board Post: Hi, Lynn, Great post! This is an excellent use of the 'Net and genealogy. Looks like the precise name of the disease is: Charcot-Marie-Tooth I you put that into the following site: http://www.nlm.nih.gov/medlineplus/ Then you will find much more on this disease. Looks like Muscular Dystrophy is connected and the association working on that disease is involved. See: http://www.mdausa.org/publications/fa-cmt.html Apparently, it is not all that rare, but just something that the average physician is not likely to encoutner which makes it seem rare. Best regards, Jane