I have heard of genealogist that in doing research have also researched what kind of disease their ancestors had and keep a record of the information to take to their doctor if there was any complications in their family. I have scleroderma and I don't know if it ever affected any of my descendents or not - but it's something that little is know of. I have had to have my esophagus dilated twice and my skin is tightening and it is affecting mt hands and feet now I'm having problems with my blood count. I've been lucky though. I have had the slow acting kind for the past - but it seems to be catching up. But at my age I guess it's time. Do you know of any one with scleroderma, if you do I would like to discuss with them what the doctors are doing for them. Thank you Ruth At 10:21 PM 6/17/1998 -0500, you wrote: >Gayle, > >I am so sorry to hear of your daughter's death. My oldest daughter has >celiac sprue disease. I had never heard of it but it is becoming more >common. I would assume it is inherited. Her knees and elbows were breaking >out so I took her to several dermatologists before finding it to be >dermatitus herpetaformus. The doctor tried to control it with pills, she >takes Dapson, a medicine for leprosy. She also has to watch her diet, no >wheat, oats, rye, or barley. That eliminates a lot of things you wouldn't >think of unless you read the label. No distilled vinegar, no catsup, >mayonaise, mustard, etc. I have read that a large population of Ireland has >this disease. I have often thought that ancestors could have had this >disease and died not knowing what caused the death or calling it something >else. > >Sandy > > > > >==== KORNEGAY Mailing List ==== >To view Kornegay Web Pages go to http://www.ddaccess.com/jbquinn/Kornegay.htm > > >