Sandy, Thank you for sharing words with me about Dee Dee. We are never prepared when our children are in harm's way. I give my Mom much credit for Dee Dee's extended life. My Mom is a nurse. I'm sorry to hear about your daughter. How old is she? They say FAA is an auto recessive gene disease. Much as the same principle as Cystic Fibrosis. You know the Whitfield, O'GRADY's, O'Daniel's were of Irish heritage.. Ralf Dietrich who lives in Germany and who Mom and met with in Washington, DC represents 45 German families with FAA Families intermarry there so most probably that is what happens with some of these illnesses. We have another auto immune disease---Lupus. This is on Mom's side of the family: Her two sister each having a different type lupus: discoid and SLE. Medical science can do a lot but not everything. Does the medication help with your daughter? Is she able to live a relatively normal life except for the diet restrictions? I wish her well. The Saturday Evening Post I believe has topics on the illness you mentioned. Is your daughter in a research program to help learn the cause and to help find a cure? The NIH in Washington, DC does lots of studies for various diseases. Sandy, I hope for the best for your daughter. Take care and again thank you for sharing. Gayle W. Licari Sandra Kornegay Rhodes wrote: > Gayle, > > I am so sorry to hear of your daughter's death. My oldest daughter has > celiac sprue disease. I had never heard of it but it is becoming more > common. I would assume it is inherited. Her knees and elbows were breaking > out so I took her to several dermatologists before finding it to be > dermatitus herpetaformus. The doctor tried to control it with pills, she > takes Dapson, a medicine for leprosy. She also has to watch her diet, no > wheat, oats, rye, or barley. That eliminates a lot of things you wouldn't > think of unless you read the label. No distilled vinegar, no catsup, > mayonaise, mustard, etc. I have read that a large population of Ireland has > this disease. I have often thought that ancestors could have had this > disease and died not knowing what caused the death or calling it something > else. > > Sandy > > ==== KORNEGAY Mailing List ==== > To view Kornegay Web Pages go to http://www.ddaccess.com/jbquinn/Kornegay.htm