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    1. [HD Genealogy] New Mail list at Io
    2. Gina Heffernan
    3. Instead of sending out invites from Io one at a time, I've added a Subscribe button to the website. You DON'T need an account there to be in a group. http://hdgenealogy.org/list.htm This RootsWeb list will be active until the 1st but will be gone after that. Gina

    02/19/2020 11:22:36
    1. [HD Genealogy] Re: Mailing List
    2. herdindogz
    3. If you dont mind, I offer a correction. FB groups are easily searchable within a group. I just did one. I went to one of my groups, at the top of the page is a search bar that says "Search in [name of group]". I entered my search term and got not only a list of posts, but a whole slew of filters and options to set additional delimiters.I belong to way too many groups on FB, but I can tell you that on extremely high-volume lists like the Instant Pot community, the group would be useless if not for the Search function. Members routinely use it and the group remains active and organized. Regards all,Carol MorganSent from my Verizon, Samsung Galaxy smartphone -------- Original message --------From: Gina Heffernan via HUNTINGTON-DISEASE <huntington-disease@rootsweb.com> Date: 1/9/20 11:32 PM (GMT-05:00) To: HD List <huntington-disease@rootsweb.com> Cc: Gina Heffernan <ginagaleh@yahoo.com> Subject: [HD Genealogy] Mailing List It seems our mailing list is more popular than I thought and I've had two suggestions about the mailing list.One is two replace it with a Google Group.The other is a Facebook Group.There are pros and cons to both ideas but, if we aren't going to use them, I don't want to bother with setting them up.I'd like to hear from more of you as to whether or not you would use one or both of these forums. Feel free to contact me privately, if you wish.I'm including here part of the discussion from one of the other mailing lists to which I subscribe."When you post to a thread on FB, it is visible only as long as that thread remains active. After that, the thread scrolls out of sight and out of mind. Sure, you can read it again if you are patient enough to scroll down and down until you find it. FB isn’t searchable like GG. GG is not just a mailing list. All of the posted messages remain in a forum-like structure. You can search for anything you want and find every message that matches. When you do a search in FB, it first looks for FB pages that match the search terms and then shows posts from every page in FB. You can’t refine your search to a certain group. But FB is still a valuable tools for those who are very actively following your group. Both FB and GG should be considered as tools for each county.""Another problem with FB is that you have to have a FB account to read the posts; not so with GG. Anyone can read GG posts if the permissions are set up the way that I illustrated. And GG doesn’t require you to have a Google account to subscribe to a group."_______________________________________________Do not post anything that you need kept private.Our website is athttp://www.hdgenealogy.org/You can browse the old messages athttps://lists.rootsweb.com/hyperkitty/list/huntington-disease.rootsweb.com/_______________________________________________Email preferences: http://bit.ly/rootswebprefUnsubscribe https://lists.rootsweb.com/postorius/lists/huntington-disease@rootsweb.comPrivacy Statement: https://ancstry.me/2JWBOdY  Terms and Conditions: https://ancstry.me/2HDBym9Rootsweb Blog: http://rootsweb.blogRootsWeb is funded and supported by Ancestry.com and our loyal RootsWeb community

    01/10/2020 06:26:28
    1. [HD Genealogy] Re: Mailing List
    2. herdindogz
    3. Facebook groups have security settings. One setting, Closed, allows only members of the group to post and read posts, and the existence of the group will be available to some one doing a search. For example, an HD Caretakers group I belong to is Closed. I was screened before being allowed to join, and only other members can read or contribute posts. However I was able to find the group because it's identity is available to searches. Another setting, Secret, is the most extreme. Secret groups do not show up in searches, and are only visible to members of the group. I have friends who use Secret groups, with a membership of 1, to track their dog training, for example. I myself am in a Secret group of 2 people with my close friend - we use this group as communication between us as we are dog training partners but live an hour apart and rarely train together in real life. I think some families use Secret groups to allow for easy but private communication among members spread out around a large geographical area. Hope this clarifies a bit. Carol MorganSent from my Verizon, Samsung Galaxy smartphone -------- Original message --------From: Gina Heffernan via HUNTINGTON-DISEASE <huntington-disease@rootsweb.com> Date: 1/9/20 11:57 PM (GMT-05:00) To: A Genealogical Study of HD <huntington-disease@rootsweb.com> Cc: Gina Heffernan <ginagaleh@yahoo.com> Subject: [HD Genealogy] Re: Mailing List With Google Groups there are two options for visibilityAnyone on the webAll members of the group.If we choose the 2nd option, posts will be treated in the same manner and new members will need permission to join.I have never created a Facebook group but I think it MIGHT have a similar option.We no longer have privacy on RootsWeb, Ancestry took away that option many years ago and folks quit using the list (when I added the message at the bottom). It would be nice to be able to discuss things again without worrying about who's seeing it.    On Thursday, January 9, 2020, 10:41:58 PM CST, Lou Mongan <loumongan@gmail.com> wrote:  Just my 2 cents worth.  It looks to me like neither Facebook nor Googlewould provide the confidentiality that we have depended on in the past.What about that aspect of the problem.Cheers,LouOn Thu, Jan 9, 2020 at 8:32 PM Gina Heffernan via HUNTINGTON-DISEASE <huntington-disease@rootsweb.com> wrote:> It seems our mailing list is more popular than I thought and I've had two> suggestions about the mailing list.> One is two replace it with a Google Group.> The other is a Facebook Group.> There are pros and cons to both ideas but, if we aren't going to use them,> I don't want to bother with setting them up.> I'd like to hear from more of you as to whether or not you would use one> or both of these forums. Feel free to contact me privately, if you wish.> I'm including here part of the discussion from one of the other mailing> lists to which I subscribe.> "When you post to a thread on FB, it is visible only as long as that> thread remains active. After that, the thread scrolls out of sight and out> of mind. Sure, you can read it again if you are patient enough to scroll> down and down until you find it. FB isn’t searchable like GG. GG is not> just a mailing list. All of the posted messages remain in a forum-like> structure. You can search for anything you want and find every message that> matches. When you do a search in FB, it first looks for FB pages that match> the search terms and then shows posts from every page in FB. You can’t> refine your search to a certain group. But FB is still a valuable tools for> those who are very actively following your group. Both FB and GG should be> considered as tools for each county."> "Another problem with FB is that you have to have a FB account to read the> posts; not so with GG. Anyone can read GG posts if the permissions are set> up the way that I illustrated. And GG doesn’t require you to have a Google> account to subscribe to a group.">>> _______________________________________________> Do not post anything that you need kept private.>> Our website is at> http://www.hdgenealogy.org/>> You can browse the old messages at> https://lists.rootsweb.com/hyperkitty/list/huntington-disease.rootsweb.com/> _______________________________________________> Email preferences: http://bit.ly/rootswebpref> Unsubscribe> https://lists.rootsweb.com/postorius/lists/huntington-disease@rootsweb.com> Privacy Statement: https://ancstry.me/2JWBOdY  Terms and Conditions:> https://ancstry.me/2HDBym9> Rootsweb Blog: http://rootsweb.blog> RootsWeb is funded and supported by Ancestry.com and our loyal RootsWeb> community>-- Email: LouMongan@gmail.com_______________________________________________Do not post anything that you need kept private.Our website is athttp://www.hdgenealogy.org/You can browse the old messages athttps://lists.rootsweb.com/hyperkitty/list/huntington-disease.rootsweb.com/_______________________________________________Email preferences: http://bit.ly/rootswebprefUnsubscribe https://lists.rootsweb.com/postorius/lists/huntington-disease@rootsweb.comPrivacy Statement: https://ancstry.me/2JWBOdY  Terms and Conditions: https://ancstry.me/2HDBym9Rootsweb Blog: http://rootsweb.blogRootsWeb is funded and supported by Ancestry.com and our loyal RootsWeb community  _______________________________________________Do not post anything that you need kept private.Our website is athttp://www.hdgenealogy.org/You can browse the old messages athttps://lists.rootsweb.com/hyperkitty/list/huntington-disease.rootsweb.com/_______________________________________________Email preferences: http://bit.ly/rootswebprefUnsubscribe https://lists.rootsweb.com/postorius/lists/huntington-disease@rootsweb.comPrivacy Statement: https://ancstry.me/2JWBOdY  Terms and Conditions: https://ancstry.me/2HDBym9Rootsweb Blog: http://rootsweb.blogRootsWeb is funded and supported by Ancestry.com and our loyal RootsWeb community

    01/10/2020 06:19:14
    1. [HD Genealogy] Re: Mailing List
    2. Gina Heffernan
    3. With Google Groups there are two options for visibilityAnyone on the webAll members of the group. If we choose the 2nd option, posts will be treated in the same manner and new members will need permission to join. I have never created a Facebook group but I think it MIGHT have a similar option. We no longer have privacy on RootsWeb, Ancestry took away that option many years ago and folks quit using the list (when I added the message at the bottom). It would be nice to be able to discuss things again without worrying about who's seeing it. On Thursday, January 9, 2020, 10:41:58 PM CST, Lou Mongan <loumongan@gmail.com> wrote: Just my 2 cents worth.  It looks to me like neither Facebook nor Google would provide the confidentiality that we have depended on in the past. What about that aspect of the problem. Cheers, Lou On Thu, Jan 9, 2020 at 8:32 PM Gina Heffernan via HUNTINGTON-DISEASE < huntington-disease@rootsweb.com> wrote: > It seems our mailing list is more popular than I thought and I've had two > suggestions about the mailing list. > One is two replace it with a Google Group. > The other is a Facebook Group. > There are pros and cons to both ideas but, if we aren't going to use them, > I don't want to bother with setting them up. > I'd like to hear from more of you as to whether or not you would use one > or both of these forums. Feel free to contact me privately, if you wish. > I'm including here part of the discussion from one of the other mailing > lists to which I subscribe. > "When you post to a thread on FB, it is visible only as long as that > thread remains active. After that, the thread scrolls out of sight and out > of mind. Sure, you can read it again if you are patient enough to scroll > down and down until you find it. FB isn’t searchable like GG. GG is not > just a mailing list. All of the posted messages remain in a forum-like > structure. You can search for anything you want and find every message that > matches. When you do a search in FB, it first looks for FB pages that match > the search terms and then shows posts from every page in FB. You can’t > refine your search to a certain group. But FB is still a valuable tools for > those who are very actively following your group. Both FB and GG should be > considered as tools for each county." > "Another problem with FB is that you have to have a FB account to read the > posts; not so with GG. Anyone can read GG posts if the permissions are set > up the way that I illustrated. And GG doesn’t require you to have a Google > account to subscribe to a group." > > > _______________________________________________ > Do not post anything that you need kept private. > > Our website is at > http://www.hdgenealogy.org/ > > You can browse the old messages at > https://lists.rootsweb.com/hyperkitty/list/huntington-disease.rootsweb.com/ > _______________________________________________ > Email preferences: http://bit.ly/rootswebpref > Unsubscribe > https://lists.rootsweb.com/postorius/lists/huntington-disease@rootsweb.com > Privacy Statement: https://ancstry.me/2JWBOdY Terms and Conditions: > https://ancstry.me/2HDBym9 > Rootsweb Blog: http://rootsweb.blog > RootsWeb is funded and supported by Ancestry.com and our loyal RootsWeb > community > -- Email: LouMongan@gmail.com _______________________________________________ Do not post anything that you need kept private. Our website is at http://www.hdgenealogy.org/ You can browse the old messages at https://lists.rootsweb.com/hyperkitty/list/huntington-disease.rootsweb.com/ _______________________________________________ Email preferences: http://bit.ly/rootswebpref Unsubscribe https://lists.rootsweb.com/postorius/lists/huntington-disease@rootsweb.com Privacy Statement: https://ancstry.me/2JWBOdY Terms and Conditions: https://ancstry.me/2HDBym9 Rootsweb Blog: http://rootsweb.blog RootsWeb is funded and supported by Ancestry.com and our loyal RootsWeb community

    01/09/2020 09:57:17
    1. [HD Genealogy] Re: Mailing List
    2. Lou Mongan
    3. Just my 2 cents worth. It looks to me like neither Facebook nor Google would provide the confidentiality that we have depended on in the past. What about that aspect of the problem. Cheers, Lou On Thu, Jan 9, 2020 at 8:32 PM Gina Heffernan via HUNTINGTON-DISEASE < huntington-disease@rootsweb.com> wrote: > It seems our mailing list is more popular than I thought and I've had two > suggestions about the mailing list. > One is two replace it with a Google Group. > The other is a Facebook Group. > There are pros and cons to both ideas but, if we aren't going to use them, > I don't want to bother with setting them up. > I'd like to hear from more of you as to whether or not you would use one > or both of these forums. Feel free to contact me privately, if you wish. > I'm including here part of the discussion from one of the other mailing > lists to which I subscribe. > "When you post to a thread on FB, it is visible only as long as that > thread remains active. After that, the thread scrolls out of sight and out > of mind. Sure, you can read it again if you are patient enough to scroll > down and down until you find it. FB isn’t searchable like GG. GG is not > just a mailing list. All of the posted messages remain in a forum-like > structure. You can search for anything you want and find every message that > matches. When you do a search in FB, it first looks for FB pages that match > the search terms and then shows posts from every page in FB. You can’t > refine your search to a certain group. But FB is still a valuable tools for > those who are very actively following your group. Both FB and GG should be > considered as tools for each county." > "Another problem with FB is that you have to have a FB account to read the > posts; not so with GG. Anyone can read GG posts if the permissions are set > up the way that I illustrated. And GG doesn’t require you to have a Google > account to subscribe to a group." > > > _______________________________________________ > Do not post anything that you need kept private. > > Our website is at > http://www.hdgenealogy.org/ > > You can browse the old messages at > https://lists.rootsweb.com/hyperkitty/list/huntington-disease.rootsweb.com/ > _______________________________________________ > Email preferences: http://bit.ly/rootswebpref > Unsubscribe > https://lists.rootsweb.com/postorius/lists/huntington-disease@rootsweb.com > Privacy Statement: https://ancstry.me/2JWBOdY Terms and Conditions: > https://ancstry.me/2HDBym9 > Rootsweb Blog: http://rootsweb.blog > RootsWeb is funded and supported by Ancestry.com and our loyal RootsWeb > community > -- Email: LouMongan@gmail.com

    01/09/2020 09:41:36
    1. [HD Genealogy] Mailing List
    2. Gina Heffernan
    3. It seems our mailing list is more popular than I thought and I've had two suggestions about the mailing list. One is two replace it with a Google Group. The other is a Facebook Group. There are pros and cons to both ideas but, if we aren't going to use them, I don't want to bother with setting them up. I'd like to hear from more of you as to whether or not you would use one or both of these forums. Feel free to contact me privately, if you wish. I'm including here part of the discussion from one of the other mailing lists to which I subscribe. "When you post to a thread on FB, it is visible only as long as that thread remains active. After that, the thread scrolls out of sight and out of mind. Sure, you can read it again if you are patient enough to scroll down and down until you find it. FB isn’t searchable like GG. GG is not just a mailing list. All of the posted messages remain in a forum-like structure. You can search for anything you want and find every message that matches. When you do a search in FB, it first looks for FB pages that match the search terms and then shows posts from every page in FB. You can’t refine your search to a certain group. But FB is still a valuable tools for those who are very actively following your group. Both FB and GG should be considered as tools for each county." "Another problem with FB is that you have to have a FB account to read the posts; not so with GG. Anyone can read GG posts if the permissions are set up the way that I illustrated. And GG doesn’t require you to have a Google account to subscribe to a group."

    01/09/2020 09:31:49
    1. [HD Genealogy] Re: Fw: [ROOT-LO-ANNOUN] RootsWeb Mailing Lists
    2. Tamara Bennett
    3. HI Gina Thank you Please keep me posted and thank you for your work Smiles ☺ Tamara Bennett smilingdragontaichi@gmail.com 021 255 1087 -----Original Message----- From: Gina Heffernan via HUNTINGTON-DISEASE <huntington-disease@rootsweb.com> Sent: Wednesday, 8 January 2020 3:03 pm To: HD List <huntington-disease@rootsweb.com> Cc: Gina Heffernan <ginagaleh@yahoo.com> Subject: [HD Genealogy] Fw: [ROOT-LO-ANNOUN] RootsWeb Mailing Lists It looks like we're going to be losing our mail list but, since we don't really use it any more, I'm not going to be looking for another one. ----- Forwarded Message ----- From: RootsWeb Administration <rwmailinglists@ancestry.com>To: "rootsweb-listowners-announcements@rootsweb.com" <rootsweb-listowners-announcements@rootsweb.com>Sent: Tuesday, January 7, 2020, 11:36:15 AM CSTSubject: [ROOT-LO-ANNOUN] RootsWeb Mailing Lists Beginning March 2nd, 2020 the Mailing Lists functionality on RootsWeb will be discontinued. Users will no longer be able to send outgoing emails or accept incoming emails. Additionally, administration tools will no longer be available to list administrators and mailing lists will be put into an archival state. Administrators may save the emails in their list prior to March 2nd. After that, mailing list archives will remain available and searchable on RootsWeb. As an alternative to RootsWeb Mailing Lists, Ancestry message boards are a great option to network with others in the genealogy community. Message boards are available for free with an Ancestry registered account. Thank you for being part of the RootsWeb family and contributing to this community. Sincerely, The RootsWeb team _______________________________________________ Email preferences: http://bit.ly/rootswebpref Unsubscribe https://lists.rootsweb.com/postorius/lists/rootsweb-listowners-announcements@rootsweb.com Privacy Statement: https://ancstry.me/2JWBOdY Terms and Conditions: https://ancstry.me/2HDBym9 Rootsweb Blog: http://rootsweb.blog RootsWeb is funded and supported by Ancestry.com and our loyal RootsWeb community _______________________________________________ Do not post anything that you need kept private. Our website is at http://www.hdgenealogy.org/ You can browse the old messages at https://lists.rootsweb.com/hyperkitty/list/huntington-disease.rootsweb.com/ _______________________________________________ Email preferences: http://bit.ly/rootswebpref Unsubscribe https://lists.rootsweb.com/postorius/lists/huntington-disease@rootsweb.com Privacy Statement: https://ancstry.me/2JWBOdY Terms and Conditions: https://ancstry.me/2HDBym9 Rootsweb Blog: http://rootsweb.blog RootsWeb is funded and supported by Ancestry.com and our loyal RootsWeb community

    01/09/2020 07:24:17
    1. [HD Genealogy] Fw: [ROOT-LO-ANNOUN] RootsWeb Mailing Lists
    2. Gina Heffernan
    3. It looks like we're going to be losing our mail list but, since we don't really use it any more, I'm not going to be looking for another one. ----- Forwarded Message ----- From: RootsWeb Administration <rwmailinglists@ancestry.com>To: "rootsweb-listowners-announcements@rootsweb.com" <rootsweb-listowners-announcements@rootsweb.com>Sent: Tuesday, January 7, 2020, 11:36:15 AM CSTSubject: [ROOT-LO-ANNOUN] RootsWeb Mailing Lists Beginning March 2nd, 2020 the Mailing Lists functionality on RootsWeb will be discontinued. Users will no longer be able to send outgoing emails or accept incoming emails.  Additionally, administration tools will no longer be available to list administrators and mailing lists will be put into an archival state. Administrators may save the emails in their list prior to March 2nd. After that, mailing list archives will remain available and searchable on RootsWeb. As an alternative to RootsWeb Mailing Lists, Ancestry message boards are a great option to network with others in the genealogy community. Message boards are available for free with an Ancestry registered account. Thank you for being part of the RootsWeb family and contributing to this community. Sincerely, The RootsWeb team _______________________________________________ Email preferences: http://bit.ly/rootswebpref Unsubscribe https://lists.rootsweb.com/postorius/lists/rootsweb-listowners-announcements@rootsweb.com Privacy Statement: https://ancstry.me/2JWBOdY Terms and Conditions: https://ancstry.me/2HDBym9 Rootsweb Blog: http://rootsweb.blog RootsWeb is funded and supported by Ancestry.com and our loyal RootsWeb community

    01/07/2020 07:03:14
    1. [HD Genealogy] Re: Curiosity
    2. Lou Mongan
    3. Gina, Here is my understanding. A person who has tested positive for the mutant HD gene may already exhibit symptoms or may not have yet reached that point in the disease process. A HD carrier is a person who is gene positive for HD. He/she may or may not be symptomatic at a particular point in time but if he/she lives long enough will develop HD symptoms. If the person is from a HD family but is HD gene negative, he/she will never develop symptoms. If two HD negative persons mate they will not have a HD gene positive child. However if a HD gene positive person mates with a HD gene negative person, each of their children has a 50 percent chance of inheriting a HD positive gene whether the affected parent currently exhibits symptoms or not. If two HD gene positive persons mate, it is even more likely than 50 percent that at least one of the child’s two copies of the gene in question will be positive for the HD mutant gene. Hope this is helpful. Lou Sent from my iPhone > On Nov 19, 2019, at 4:06 AM, Gina Heffernan via HUNTINGTON-DISEASE <huntington-disease@rootsweb.com> wrote: > >  I'm not very familiar with genetic/DNA terminology (nor HD terminology). My family contains people who had HD and people who do not. I was asked if it's possible for two people who are not symptomatic to produce a child who is if they both have siblings or perhaps cousins who are symptomatic. I've been told that you can only become symptomatic if your parent is but, in theory, if two parents possess the genetic combination, could it cause the propensity for symptoms? > I understand that autosomal is the DNA of both parents as opposed to X or Y (meaning that HD can come from either parent). I've been calling the symptomatic folks "carriers", I suppose all the children in a family where HD is present are probably carriers of the gene/genes but not all are affected? I really don't know what to call them other than victims but that term has grown to have negative connotations and my grandaunt would not have considered herself a victim; she was a beautiful and stoic lady. I don't want to hurt anyone's feelings - this project is my tribute to our family members who were/are ravaged by HD and it still depends on other "where did it come from?" folks. > I'm sorry to be a bother. When I started this project, I had two symptomatic people to ask before I discussed things publicly. > To rephrase, can TWO non-symptomatic carriers of HD produce a symptomatic child? Even if it hasn't happened, could it? > > Gina > > > On Monday, November 18, 2019, 03:54:39 PM CST, herdindogz via HUNTINGTON-DISEASE <huntington-disease@rootsweb.com> wrote: > > What do you mean by carrier? HD is autosomal dominant. > > > _______________________________________________ > Do not post anything that you need kept private. > > Our website is at > http://www.hdgenealogy.org/ > > You can browse the old messages at > https://lists.rootsweb.com/hyperkitty/list/huntington-disease.rootsweb.com/ > _______________________________________________ > Email preferences: http://bit.ly/rootswebpref > Unsubscribe https://lists.rootsweb.com/postorius/lists/huntington-disease@rootsweb.com > Privacy Statement: https://ancstry.me/2JWBOdY Terms and Conditions: https://ancstry.me/2HDBym9 > Rootsweb Blog: http://rootsweb.blog > RootsWeb is funded and supported by Ancestry.com and our loyal RootsWeb community > > > _______________________________________________ > Do not post anything that you need kept private. > > Our website is at > http://www.hdgenealogy.org/ > > You can browse the old messages at > https://lists.rootsweb.com/hyperkitty/list/huntington-disease.rootsweb.com/ > _______________________________________________ > Email preferences: http://bit.ly/rootswebpref > Unsubscribe https://lists.rootsweb.com/postorius/lists/huntington-disease@rootsweb.com > Privacy Statement: https://ancstry.me/2JWBOdY Terms and Conditions: https://ancstry.me/2HDBym9 > Rootsweb Blog: http://rootsweb.blog > RootsWeb is funded and supported by Ancestry.com and our loyal RootsWeb community

    11/19/2019 01:46:14
    1. [HD Genealogy] Re: Curiosity
    2. herdindogz
    3. Your question about the child....It's all about gene status, not whether or not a person is symptomatic.  My mother did not have symptoms until she was about 70 years old, but I have a 50% chance of having HD. Had she died earlier, my risk would not be different, but we simply would not have known she had HD. Two people with normal gene status will not produce a child with HD.  HOWEVER. BUT.  EXCEPTIONS. Here's where it can get complicated.  The science in this area is expanding and currently includes some research and observations about these extremely rare and emerging reports. We will know more in the future. **For all cases, 2 people with a normal gene status cannot produce a child with the abnormal gene.** There is currently research happening about folks whose gene status is not normal but almost normal. This appears to be a group that can clarify a number of issues about the disease. Hope this helps you in plain language. Sent from my Verizon, Samsung Galaxy smartphone -------- Original message --------From: Gina Heffernan via HUNTINGTON-DISEASE <huntington-disease@rootsweb.com> Date: 11/19/19 7:04 AM (GMT-05:00) To: herdindogz via HUNTINGTON-DISEASE <huntington-disease@rootsweb.com> Cc: Gina Heffernan <ginagaleh@yahoo.com> Subject: [HD Genealogy] Re: Curiosity I'm not very familiar with genetic/DNA terminology (nor HD terminology). My family contains people who had HD and people who do not. I was asked if it's possible for two people who are not symptomatic to produce a child who is if they both have siblings or perhaps cousins who are symptomatic. I've been told that you can only become symptomatic if your parent is but, in theory, if two parents possess the genetic combination, could it cause the propensity for symptoms?I understand that autosomal is the DNA of both parents as opposed to X or Y (meaning that HD can come from either parent). I've been calling the symptomatic folks "carriers", I suppose all the children in a family where HD is present are probably carriers of the gene/genes but not all are affected? I really don't know what to call them other than victims but that term has grown to have negative connotations and my grandaunt would not have considered herself a victim; she was a beautiful and stoic lady. I don't want to hurt anyone's feelings - this project is my tribute to our family members who were/are ravaged by HD and it still depends on other "where did it come from?" folks.I'm sorry to be a bother. When I started this project, I had two symptomatic people to ask before I discussed things publicly.To rephrase, can TWO non-symptomatic carriers of HD produce a symptomatic child? Even if it hasn't happened, could it?Gina    On Monday, November 18, 2019, 03:54:39 PM CST, herdindogz via HUNTINGTON-DISEASE <huntington-disease@rootsweb.com> wrote:  What do you mean by carrier? HD is autosomal dominant. _______________________________________________Do not post anything that you need kept private.Our website is athttp://www.hdgenealogy.org/You can browse the old messages athttps://lists.rootsweb.com/hyperkitty/list/huntington-disease.rootsweb.com/_______________________________________________Email preferences: http://bit.ly/rootswebprefUnsubscribe https://lists.rootsweb.com/postorius/lists/huntington-disease@rootsweb.comPrivacy Statement: https://ancstry.me/2JWBOdY  Terms and Conditions: https://ancstry.me/2HDBym9Rootsweb Blog: http://rootsweb.blogRootsWeb is funded and supported by Ancestry.com and our loyal RootsWeb community  _______________________________________________Do not post anything that you need kept private.Our website is athttp://www.hdgenealogy.org/You can browse the old messages athttps://lists.rootsweb.com/hyperkitty/list/huntington-disease.rootsweb.com/_______________________________________________Email preferences: http://bit.ly/rootswebprefUnsubscribe https://lists.rootsweb.com/postorius/lists/huntington-disease@rootsweb.comPrivacy Statement: https://ancstry.me/2JWBOdY  Terms and Conditions: https://ancstry.me/2HDBym9Rootsweb Blog: http://rootsweb.blogRootsWeb is funded and supported by Ancestry.com and our loyal RootsWeb community

    11/19/2019 07:44:16
    1. [HD Genealogy] Re: Curiosity
    2. herdindogz
    3. Gina, You're not being dumb! Genetics is complicated!Here's a good link, but it's a lot of info in a couple of paragraphs.  So read a sentence and pause, think..  then read the next sentence. I'll explain autosomal dominant.  First you know we get one copy of a gene from one parent, and we get another copy from our other parent. In HD, there is no recessive gene. For example, in eye color, you could have a blue gene and a brown gene from your parents. Your eyes would be brown because blue is dominant over recessive. Your child could have blue eyes if the child got your blue gene and a blue gene from the child's dad. This is an example of the blue gene being recessive.In HD, there is no recessive. There is only a mutant, disease causing gene and a healthy gene. The mutant gene will ALWAYS cause HD symptoms to appear eventually in anyone who inherits it, no matter if the other gene is healthy or mutant. This is what is meant by autosomal dominant.  It only takes 1 copy of the mutant, disease-causing gene to cause HD, and it will *always, eventually* cause HD. Thus there are no "carriers" in the sense that a brown eyed person can carry a blue eyed gene. This is the most basic description of HD genetics. It does get more elaborate but fundamentally,  this is the process.  Carol MorganSent from my Verizon, Samsung Galaxy smartphone -------- Original message --------From: Gina Heffernan via HUNTINGTON-DISEASE <huntington-disease@rootsweb.com> Date: 11/19/19 7:04 AM (GMT-05:00) To: herdindogz via HUNTINGTON-DISEASE <huntington-disease@rootsweb.com> Cc: Gina Heffernan <ginagaleh@yahoo.com> Subject: [HD Genealogy] Re: Curiosity I'm not very familiar with genetic/DNA terminology (nor HD terminology). My family contains people who had HD and people who do not. I was asked if it's possible for two people who are not symptomatic to produce a child who is if they both have siblings or perhaps cousins who are symptomatic. I've been told that you can only become symptomatic if your parent is but, in theory, if two parents possess the genetic combination, could it cause the propensity for symptoms?I understand that autosomal is the DNA of both parents as opposed to X or Y (meaning that HD can come from either parent). I've been calling the symptomatic folks "carriers", I suppose all the children in a family where HD is present are probably carriers of the gene/genes but not all are affected? I really don't know what to call them other than victims but that term has grown to have negative connotations and my grandaunt would not have considered herself a victim; she was a beautiful and stoic lady. I don't want to hurt anyone's feelings - this project is my tribute to our family members who were/are ravaged by HD and it still depends on other "where did it come from?" folks.I'm sorry to be a bother. When I started this project, I had two symptomatic people to ask before I discussed things publicly.To rephrase, can TWO non-symptomatic carriers of HD produce a symptomatic child? Even if it hasn't happened, could it?Gina    On Monday, November 18, 2019, 03:54:39 PM CST, herdindogz via HUNTINGTON-DISEASE <huntington-disease@rootsweb.com> wrote:  What do you mean by carrier? HD is autosomal dominant. _______________________________________________Do not post anything that you need kept private.Our website is athttp://www.hdgenealogy.org/You can browse the old messages athttps://lists.rootsweb.com/hyperkitty/list/huntington-disease.rootsweb.com/_______________________________________________Email preferences: http://bit.ly/rootswebprefUnsubscribe https://lists.rootsweb.com/postorius/lists/huntington-disease@rootsweb.comPrivacy Statement: https://ancstry.me/2JWBOdY  Terms and Conditions: https://ancstry.me/2HDBym9Rootsweb Blog: http://rootsweb.blogRootsWeb is funded and supported by Ancestry.com and our loyal RootsWeb community  _______________________________________________Do not post anything that you need kept private.Our website is athttp://www.hdgenealogy.org/You can browse the old messages athttps://lists.rootsweb.com/hyperkitty/list/huntington-disease.rootsweb.com/_______________________________________________Email preferences: http://bit.ly/rootswebprefUnsubscribe https://lists.rootsweb.com/postorius/lists/huntington-disease@rootsweb.comPrivacy Statement: https://ancstry.me/2JWBOdY  Terms and Conditions: https://ancstry.me/2HDBym9Rootsweb Blog: http://rootsweb.blogRootsWeb is funded and supported by Ancestry.com and our loyal RootsWeb community

    11/19/2019 07:35:40
    1. [HD Genealogy] Re: Curiosity
    2. Susan West
    3. My understanding is that you either receive the gene or you do not. My mother was hospitalized when she was 28 and remained so until she died at 48. Her father and many of his siblings also died from HD. My great grandmother and her mother died as well. I think that is as far back as I have been able to trace HD. My GG grandmother was Susan Catherine Green (her mother was a Rowland). They ended up in Bearden, Arkansas. My gg grandmother married a Mosley. I have heard that many in that area of Arkansas called it the “Mosley Disease”. I have also read about how many “Cag repeats” can affect the severity? Most of the ancestors I know that had HD pretty much died by the time they were 50-58. Mid 50’s is very common. I chose not to be tested, simply for the “no cure” factor. I did not have children. I am nearing 60 and feel I may have gotten lucky. From what I understand, it is the “luck of the draw” and not much else controlling. Susan West On Tue, Nov 19, 2019 at 6:06 AM Gina Heffernan via HUNTINGTON-DISEASE < huntington-disease@rootsweb.com> wrote: > I'm not very familiar with genetic/DNA terminology (nor HD terminology). > My family contains people who had HD and people who do not. I was asked if > it's possible for two people who are not symptomatic to produce a child who > is if they both have siblings or perhaps cousins who are symptomatic. I've > been told that you can only become symptomatic if your parent is but, in > theory, if two parents possess the genetic combination, could it cause the > propensity for symptoms? > I understand that autosomal is the DNA of both parents as opposed to X or > Y (meaning that HD can come from either parent). I've been calling the > symptomatic folks "carriers", I suppose all the children in a family where > HD is present are probably carriers of the gene/genes but not all are > affected? I really don't know what to call them other than victims but that > term has grown to have negative connotations and my grandaunt would not > have considered herself a victim; she was a beautiful and stoic lady. I > don't want to hurt anyone's feelings - this project is my tribute to our > family members who were/are ravaged by HD and it still depends on other > "where did it come from?" folks. > I'm sorry to be a bother. When I started this project, I had two > symptomatic people to ask before I discussed things publicly. > To rephrase, can TWO non-symptomatic carriers of HD produce a symptomatic > child? Even if it hasn't happened, could it? > > Gina > > > On Monday, November 18, 2019, 03:54:39 PM CST, herdindogz via > HUNTINGTON-DISEASE <huntington-disease@rootsweb.com> wrote: > > What do you mean by carrier? HD is autosomal dominant. > > > _______________________________________________ > Do not post anything that you need kept private. > > Our website is at > http://www.hdgenealogy.org/ > > You can browse the old messages at > https://lists.rootsweb.com/hyperkitty/list/huntington-disease.rootsweb.com/ > _______________________________________________ > Email preferences: http://bit.ly/rootswebpref > Unsubscribe > https://lists.rootsweb.com/postorius/lists/huntington-disease@rootsweb.com > Privacy Statement: https://ancstry.me/2JWBOdY Terms and Conditions: > https://ancstry.me/2HDBym9 > Rootsweb Blog: http://rootsweb.blog > RootsWeb is funded and supported by Ancestry.com and our loyal RootsWeb > community > > > _______________________________________________ > Do not post anything that you need kept private. > > Our website is at > http://www.hdgenealogy.org/ > > You can browse the old messages at > https://lists.rootsweb.com/hyperkitty/list/huntington-disease.rootsweb.com/ > _______________________________________________ > Email preferences: http://bit.ly/rootswebpref > Unsubscribe > https://lists.rootsweb.com/postorius/lists/huntington-disease@rootsweb.com > Privacy Statement: https://ancstry.me/2JWBOdY Terms and Conditions: > https://ancstry.me/2HDBym9 > Rootsweb Blog: http://rootsweb.blog > RootsWeb is funded and supported by Ancestry.com and our loyal RootsWeb > community > -- Sent from Gmail Mobile

    11/19/2019 07:33:31
    1. [HD Genealogy] New surnames
    2. Gina Heffernan
    3. I've added two new surnames to the site, GRAHAM and KEHL.

    11/19/2019 05:16:07
    1. [HD Genealogy] Re: Curiosity
    2. Gina Heffernan
    3. I'm not very familiar with genetic/DNA terminology (nor HD terminology). My family contains people who had HD and people who do not. I was asked if it's possible for two people who are not symptomatic to produce a child who is if they both have siblings or perhaps cousins who are symptomatic. I've been told that you can only become symptomatic if your parent is but, in theory, if two parents possess the genetic combination, could it cause the propensity for symptoms? I understand that autosomal is the DNA of both parents as opposed to X or Y (meaning that HD can come from either parent). I've been calling the symptomatic folks "carriers", I suppose all the children in a family where HD is present are probably carriers of the gene/genes but not all are affected? I really don't know what to call them other than victims but that term has grown to have negative connotations and my grandaunt would not have considered herself a victim; she was a beautiful and stoic lady. I don't want to hurt anyone's feelings - this project is my tribute to our family members who were/are ravaged by HD and it still depends on other "where did it come from?" folks. I'm sorry to be a bother. When I started this project, I had two symptomatic people to ask before I discussed things publicly. To rephrase, can TWO non-symptomatic carriers of HD produce a symptomatic child? Even if it hasn't happened, could it? Gina On Monday, November 18, 2019, 03:54:39 PM CST, herdindogz via HUNTINGTON-DISEASE <huntington-disease@rootsweb.com> wrote: What do you mean by carrier? HD is autosomal dominant.  _______________________________________________ Do not post anything that you need kept private. Our website is at http://www.hdgenealogy.org/ You can browse the old messages at https://lists.rootsweb.com/hyperkitty/list/huntington-disease.rootsweb.com/ _______________________________________________ Email preferences: http://bit.ly/rootswebpref Unsubscribe https://lists.rootsweb.com/postorius/lists/huntington-disease@rootsweb.com Privacy Statement: https://ancstry.me/2JWBOdY Terms and Conditions: https://ancstry.me/2HDBym9 Rootsweb Blog: http://rootsweb.blog RootsWeb is funded and supported by Ancestry.com and our loyal RootsWeb community

    11/19/2019 05:04:06
    1. [HD Genealogy] Re: Curiosity
    2. herdindogz
    3. What do you mean by carrier? HD is autosomal dominant. Sent from my Verizon, Samsung Galaxy smartphone -------- Original message --------From: Gina Heffernan via HUNTINGTON-DISEASE <huntington-disease@rootsweb.com> Date: 11/18/19 1:27 PM (GMT-05:00) To: HD List <huntington-disease@rootsweb.com> Cc: Gina Heffernan <ginagaleh@yahoo.com> Subject: [HD Genealogy] Curiosity I'm wondering if anyone on this list has TWO HD lines that intermarried. Not necessarily carriers but from families that had carriers. I'm also wondering if HD can occur spontaneously when this happens? Feel free to contact me off-list if you prefer._______________________________________________Do not post anything that you need kept private.Our website is athttp://www.hdgenealogy.org/You can browse the old messages athttps://lists.rootsweb.com/hyperkitty/list/huntington-disease.rootsweb.com/_______________________________________________Email preferences: http://bit.ly/rootswebprefUnsubscribe https://lists.rootsweb.com/postorius/lists/huntington-disease@rootsweb.comPrivacy Statement: https://ancstry.me/2JWBOdY  Terms and Conditions: https://ancstry.me/2HDBym9Rootsweb Blog: http://rootsweb.blogRootsWeb is funded and supported by Ancestry.com and our loyal RootsWeb community

    11/18/2019 02:54:20
    1. [HD Genealogy] Re: Curiosity
    2. Susan West
    3. I don't know yet of any two HD lines that intermarried on my side. On Mon, Nov 18, 2019 at 12:27 PM Gina Heffernan via HUNTINGTON-DISEASE < huntington-disease@rootsweb.com> wrote: > I'm wondering if anyone on this list has TWO HD lines that intermarried. > Not necessarily carriers but from families that had carriers. I'm also > wondering if HD can occur spontaneously when this happens? Feel free to > contact me off-list if you prefer. > > > _______________________________________________ > Do not post anything that you need kept private. > > Our website is at > http://www.hdgenealogy.org/ > > You can browse the old messages at > https://lists.rootsweb.com/hyperkitty/list/huntington-disease.rootsweb.com/ > _______________________________________________ > Email preferences: http://bit.ly/rootswebpref > Unsubscribe > https://lists.rootsweb.com/postorius/lists/huntington-disease@rootsweb.com > Privacy Statement: https://ancstry.me/2JWBOdY Terms and Conditions: > https://ancstry.me/2HDBym9 > Rootsweb Blog: http://rootsweb.blog > RootsWeb is funded and supported by Ancestry.com and our loyal RootsWeb > community > -- Susan West

    11/18/2019 12:06:35
    1. [HD Genealogy] Curiosity
    2. Gina Heffernan
    3. I'm wondering if anyone on this list has TWO HD lines that intermarried. Not necessarily carriers but from families that had carriers. I'm also wondering if HD can occur spontaneously when this happens? Feel free to contact me off-list if you prefer.

    11/18/2019 11:27:39
    1. [HD Genealogy] New Surnames
    2. Gina Heffernan
    3. Okay, one more note. We have some new folks and some new surnames.  We have a new FORD researcher and his line includes ALLISON and BOLTON in Virginia.  We also have GAFFNEY in New York State.

    09/29/2019 07:18:07
    1. [HD Genealogy] New Look
    2. Gina Heffernan
    3. One more note and I'll leave you all alone. I'm thinking about "redecorating" the website and was wondering if our group would like to get involved. You can visit the website for the TNG software and look at the available templates. (I don't have it in me right now to design our own.) Once you get to the site, Click Demo at the top menu, choose Public Interface and Login (from the list) with the provided username and password then click the numbers (1-17, I think) to see how they look. I've previously used #1 on my personal site, our HD site is using #2 and I now have #5 on my personal site. The newest templates have the highest template numbers and I don't think we can use #18 until I buy an upgrade to version 12. Be sensible about your choice, unless you want to write articles for the templates with a lot of links. (JK) Once you decide on one, send it to me either on- or off-list. If you prefer to keep what we have, feel free to vote for that, too. It'll take me a couple of days to re-design the HTML portion of the site but all I have to do for the tree part is change the template and replace the title graphics. Thanks!

    09/28/2019 04:12:10
    1. [HD Genealogy] Checking In
    2. Gina Gale
    3. I got distracted and forgot to include the link to the website. http://www.hdgenealogy.org/ Gina Heffernan Rusk County, Texas <https://www.avast.com/sig-email?utm_medium=email&utm_source=link&utm_campaign=sig-email&utm_content=webmail&utm_term=icon> Virus-free. www.avast.com <https://www.avast.com/sig-email?utm_medium=email&utm_source=link&utm_campaign=sig-email&utm_content=webmail&utm_term=link> <#DAB4FAD8-2DD7-40BB-A1B8-4E2AA1F9FDF2>

    09/28/2019 12:44:58