Marilyn, Just because you share doesn't mean you have to answer surveys. I manage 12 profiles and have only filled out some surveys for myself. Max -----Original Message----- From: genealogy-dna-bounces@rootsweb.com [mailto:genealogy-dna-bounces@rootsweb.com] On Behalf Of Marilyn Bess via Sent: Saturday, November 28, 2015 6:25 AM To: McKee; genealogy-dna@rootsweb.com Subject: Re: [DNA] 23andme members removing permission to use medical data Linda and List, I opted out all my profiles when I first read the news and saw the price increase. I joined genetic genealogy because of the possibility of braking down a brick wall. Most of the cousins donating their DNA did it for that purpose. When I ask them to do a DNA test, I ask because the person was a direct descendant of a specific ancestor. Because of the nature of big business, I opted out to have time to determine what their purpose was and how it would be used/marketed, and also because the cousins had not given permission. I am not knowledgeable of all the possibilities of the use of a persons DNA and what it might mean to their descendants. When I first test five years ago, I was uneducated about some of the aspects of DNA testing but have a much better understanding of it due to this list and reading and spending hours each day working on 23andme, GEDmatch and FTDNA. Finally, opted out because of the request to do the surveys. I did not have the expertise ro answer them for all my cousins and it was time consuming to get out of them. I can always opt the profile in on an individual basis as permission is given. On Sat, Nov 28, 2015 at 4:40 AM, McKee via <genealogy-dna@rootsweb.com> wrote: > Dear List, > > The apparent debacle of the new experience at 23andme has created an > early movement of 23andme members removing permission to use their > test results for 23andme's medical research plans. > > What thoughts from this List as to any meaning this removal of > permission might have to 23andme management? > > Will this help the membership in general to regain the usefulness of > the genetic genealogy side of 23andme? > > > This genealogy-dna list membership has been very quiet about the > entire 23andme situation and I am wondering why collectively this list > is not interested in the plight of those members at 23andme who are > apparently powerless and are not represented by any strong voices in the usual > community leadership. The forums and message boards in general seem to > be giving little commentary to what 23andme is doing to the genetic > genealogy side of their membership. > > It is a surprise to me to witness this lack of interest and leadership > by this forum. > > Of course, the genetic genealogy trail is ground breaking so perhaps > this just another crevasse of big business using customers in > whatever willy nilly manner desired to achieve their avarice but I > would be very interested to see some commentary as to what is going on at 23andme. > > Linda McKee > > ------------------------------- > To unsubscribe from the list, please send an email to > GENEALOGY-DNA-request@rootsweb.com with the word 'unsubscribe' without > the quotes in the subject and the body of the message > ------------------------------- To unsubscribe from the list, please send an email to GENEALOGY-DNA-request@rootsweb.com with the word 'unsubscribe' without the quotes in the subject and the body of the message

Yesterday I just had a first look at one of the kits I manage that was transferred over to "new". Have to say, the emphasis on Health and medical conditions was pretty apparent. I didn't feel comfortable answering most of the questions for this person, so I was glad I was able to get out of the surveys and get to the "new" Ancestry views. I'll have to help the test takers access the site, where they can answer the questions if they choose to, or help them opt them out of the medical research entirely if that's their preference. It is their DNA, after all. My experience trying to find genealogical info was that it was very hard to find and then when I did, it was pretty disappointing. I, too, am adopting a wait and see attitude. Their ability to provide useful genealogical tools, if they choose to, is not in question. The question will be whether they choose to. Like Linda, I wasn't very knowledgeable about what exactly 23andMe was testing for when I had family members tested beginning in 2012, but I certainly benefited from their community forum, the ability to see how our matches matched with other matches, and the Ancestral composition chromosome view that displayed very nicely ethnicity estimates on BOTH chromosomes. It's great to have options, since no one has (yet) designed the perfect genetic genealogy database, tools & reports. Initial indications are they threw out the best of what they offered in the "new" view. Maybe it'll come back. It would be interesting to know if, in fact, 23andMe just sees genealogists as data samples that we pay to give them. Time will tell. Mary E Hall Santa Barbara, CA On Sat, Nov 28, 2015 at 7:30 AM, Max Heffler via <genealogy-dna@rootsweb.com > wrote: > Marilyn, > Just because you share doesn't mean you have to answer surveys. I > manage 12 profiles and have only filled out some surveys for myself. > > Max > > -----Original Message----- > From: genealogy-dna-bounces@rootsweb.com > [mailto:genealogy-dna-bounces@rootsweb.com] On Behalf Of Marilyn Bess via > Sent: Saturday, November 28, 2015 6:25 AM > To: McKee; genealogy-dna@rootsweb.com > Subject: Re: [DNA] 23andme members removing permission to use medical data > > Linda and List, > I opted out all my profiles when I first read the news and saw > the > price increase. I joined genetic genealogy because of the possibility of > braking down a brick wall. Most of the cousins donating their DNA did it > for > that purpose. When I ask them to do a DNA test, I ask because the person > was a direct descendant of a specific ancestor. Because of the nature of > big > business, I opted out to have time to determine what their purpose was and > how it would be used/marketed, and also because the cousins had not given > permission. I am not knowledgeable of all the possibilities of the use of > a > persons DNA and what it might mean to their descendants. > When I first test five years ago, I was uneducated about some of the > aspects > of DNA testing but have a much better understanding of it due to this list > and reading and spending hours each day working on 23andme, GEDmatch and > FTDNA. Finally, opted out because of the request to do the surveys. I did > not have the expertise ro answer them for all my cousins and it was time > consuming to get out of them. I can always opt the profile in on an > individual basis as permission is given. > > > On Sat, Nov 28, 2015 at 4:40 AM, McKee via <genealogy-dna@rootsweb.com> > wrote: > > > Dear List, > > > > The apparent debacle of the new experience at 23andme has created an > > early movement of 23andme members removing permission to use their > > test results for 23andme's medical research plans. > > > > What thoughts from this List as to any meaning this removal of > > permission might have to 23andme management? > > > > Will this help the membership in general to regain the usefulness of > > the genetic genealogy side of 23andme? > > > > > > This genealogy-dna list membership has been very quiet about the > > entire 23andme situation and I am wondering why collectively this list > > is not interested in the plight of those members at 23andme who are > > apparently powerless and are not represented by any strong voices in the > usual > > community leadership. The forums and message boards in general seem > to > > be giving little commentary to what 23andme is doing to the genetic > > genealogy side of their membership. > > > > It is a surprise to me to witness this lack of interest and leadership > > by this forum. > > > > Of course, the genetic genealogy trail is ground breaking so perhaps > > this just another crevasse of big business using customers in > > whatever willy nilly manner desired to achieve their avarice but I > > would be very interested to see some commentary as to what is going on at > 23andme. > > > > Linda McKee > > > > ------------------------------- > > To unsubscribe from the list, please send an email to > > GENEALOGY-DNA-request@rootsweb.com with the word 'unsubscribe' without > > the quotes in the subject and the body of the message > > > > ------------------------------- > To unsubscribe from the list, please send an email to > GENEALOGY-DNA-request@rootsweb.com with the word 'unsubscribe' without the > quotes in the subject and the body of the message > > > ------------------------------- > To unsubscribe from the list, please send an email to > GENEALOGY-DNA-request@rootsweb.com with the word 'unsubscribe' without > the quotes in the subject and the body of the message >