My 22-person project is designed for medical research and science in general but my interest in family history also plays a role. Two of my project members are now deceased and a third is under live in care. Some of my project members were recruited because of known medical histories. Some of my project members insist on more privacy than others. Due to my medical condition I have each of my project members set as public matches so If something happens to me there will be some selected information available in each of their profiles. RPaine -----Original Message----- From: Sam Sloan via Sent: Tuesday, October 27, 2015 9:06 PM To: Brooks Family ; genealogy-dna@rootsweb.com Subject: Re: [DNA] The New 23andMe This useful site is about health information. However, here we are referring to genealogical or family history information such as a Family Tree. Surely you are not saying that a Family Tree cannot be published without the permission of everybody who is on the tree. Here we are talking about people who joined these groups and submitted their DNA samples for the purpose of finding their relatives or health information about their relatives. There are several categories of cases. For example, I am a member of the Sloan Surname Project here: https://www.familytreedna.com/public/sloan/default.aspx?section=yresults I have one of the lowest numbers so it seems that I was one of the earliest members. My number is 13599. You can see my name about 2/3rd way down the side. However, this group is almost dead. Nobody has joined in a long time. I am not even sure if the administrators are still around. The people who joined this group joined before the Family Finder Tests existed and before gedmatch.com was created. However, their DNA samples are in storage and will still be good for 25 years. I have checked and not a single member of this group of 66 persons has uploaded to gedmatch.com other than myself. Obviously, the reason for this is these people joined a long time ago and have not kept up to date or else they are dead. I would gladly pay the fees required to give those these tests show are closely related to me to give them a longer Y-DNA test plus the Family Finder test and upload it to gedmatch.com I do not see why I should not be allowed to do that. Sam Sloan On Tue, Oct 27, 2015 at 8:42 PM, Brooks Family via < genealogy-dna@rootsweb.com> wrote: > " The HIPAA Privacy Rule protects the individually identifiable health > information about a decedent for 50 years following the date of death of > the individual. " > from here: > > http://www.hhs.gov/ocr/privacy/hipaa/understanding/coveredentities/decedents.html > > On 10/27/15 9:22 PM, Brooks Family wrote: > > My hospital's Compliance department has very adamantly informed me > > that HIPAA does not expire with the patient. > > > > And study patients are under a whole different set of rules. > > > > On 10/27/15 9:20 PM, Sam Sloan wrote: > >> The privilege of patient confidentiality disappears once the person > >> dies. > > > > > ------------------------------- > To unsubscribe from the list, please send an email to > GENEALOGY-DNA-request@rootsweb.com with the word 'unsubscribe' without > the quotes in the subject and the body of the message > ------------------------------- To unsubscribe from the list, please send an email to GENEALOGY-DNA-request@rootsweb.com with the word 'unsubscribe' without the quotes in the subject and the body of the message

The reason there is such a thing as the Social Security Death Index is that when a person dies his Social Security Number is no longer secret. Therefore the Social Security Administration publishes the number of every person who is deceased. This is also necessary for administrating the estate of deceased persons. Of course when a person is alive his number is top secret and there are severe penalties for anybody who engages in the unauthorized release of a social security number. Sam Sloan . On Tue, Oct 27, 2015 at 10:57 PM, Robert Paine <rpaine@vom.com> wrote: > My 22-person project is designed for medical research and science in > general but my interest in family history also plays a role. Two of my > project members are now deceased and a third is under live in care. Some of > my project members were recruited because of known medical histories. Some > of my project members insist on more privacy than others. > > Due to my medical condition I have each of my project members set as > public matches so If something happens to me there will be some selected > information available in each of their profiles. > > RPaine > > -----Original Message----- From: Sam Sloan via > Sent: Tuesday, October 27, 2015 9:06 PM > To: Brooks Family ; genealogy-dna@rootsweb.com > Subject: Re: [DNA] The New 23andMe > > This useful site is about health information. > However, here we are referring to genealogical or family history > information such as a Family Tree. Surely you are not saying that a Family > Tree cannot be published without the permission of everybody who is on the > tree. > > Here we are talking about people who joined these groups and submitted > their DNA samples for the purpose of finding their relatives or health > information about their relatives. > > There are several categories of cases. For example, I am a member of the > Sloan Surname Project here: > > https://www.familytreedna.com/public/sloan/default.aspx?section=yresults > > I have one of the lowest numbers so it seems that I was one of the earliest > members. My number is 13599. You can see my name about 2/3rd way down the > side. > > However, this group is almost dead. Nobody has joined in a long time. I am > not even sure if the administrators are still around. > > The people who joined this group joined before the Family Finder Tests > existed and before gedmatch.com was created. However, their DNA samples > are > in storage and will still be good for 25 years. I have checked and not a > single member of this group of 66 persons has uploaded to gedmatch.com > other than myself. Obviously, the reason for this is these people joined a > long time ago and have not kept up to date or else they are dead. > > I would gladly pay the fees required to give those these tests show are > closely related to me to give them a longer Y-DNA test plus the Family > Finder test and upload it to gedmatch.com I do not see why I should not be > allowed to do that. > > Sam Sloan > > > > > On Tue, Oct 27, 2015 at 8:42 PM, Brooks Family via < > genealogy-dna@rootsweb.com> wrote: > > " The HIPAA Privacy Rule protects the individually identifiable health >> information about a decedent for 50 years following the date of death of >> the individual. " >> from here: >> >> >> http://www.hhs.gov/ocr/privacy/hipaa/understanding/coveredentities/decedents.html >> >> On 10/27/15 9:22 PM, Brooks Family wrote: >> > My hospital's Compliance department has very adamantly informed me >> > that HIPAA does not expire with the patient. >> > >> > And study patients are under a whole different set of rules. >> > >> > On 10/27/15 9:20 PM, Sam Sloan wrote: >> >> The privilege of patient confidentiality disappears once the person >> >> dies. >> > >> >> >> ------------------------------- >> To unsubscribe from the list, please send an email to >> GENEALOGY-DNA-request@rootsweb.com with the word 'unsubscribe' without >> the quotes in the subject and the body of the message >> >> > ------------------------------- > To unsubscribe from the list, please send an email to > GENEALOGY-DNA-request@rootsweb.com with the word 'unsubscribe' without > the quotes in the subject and the body of the message >