" The HIPAA Privacy Rule protects the individually identifiable health information about a decedent for 50 years following the date of death of the individual. " from here: http://www.hhs.gov/ocr/privacy/hipaa/understanding/coveredentities/decedents.html On 10/27/15 9:22 PM, Brooks Family wrote: > My hospital's Compliance department has very adamantly informed me > that HIPAA does not expire with the patient. > > And study patients are under a whole different set of rules. > > On 10/27/15 9:20 PM, Sam Sloan wrote: >> The privilege of patient confidentiality disappears once the person >> dies. >

This useful site is about health information. However, here we are referring to genealogical or family history information such as a Family Tree. Surely you are not saying that a Family Tree cannot be published without the permission of everybody who is on the tree. Here we are talking about people who joined these groups and submitted their DNA samples for the purpose of finding their relatives or health information about their relatives. There are several categories of cases. For example, I am a member of the Sloan Surname Project here: https://www.familytreedna.com/public/sloan/default.aspx?section=yresults I have one of the lowest numbers so it seems that I was one of the earliest members. My number is 13599. You can see my name about 2/3rd way down the side. However, this group is almost dead. Nobody has joined in a long time. I am not even sure if the administrators are still around. The people who joined this group joined before the Family Finder Tests existed and before gedmatch.com was created. However, their DNA samples are in storage and will still be good for 25 years. I have checked and not a single member of this group of 66 persons has uploaded to gedmatch.com other than myself. Obviously, the reason for this is these people joined a long time ago and have not kept up to date or else they are dead. I would gladly pay the fees required to give those these tests show are closely related to me to give them a longer Y-DNA test plus the Family Finder test and upload it to gedmatch.com I do not see why I should not be allowed to do that. Sam Sloan On Tue, Oct 27, 2015 at 8:42 PM, Brooks Family via < genealogy-dna@rootsweb.com> wrote: > " The HIPAA Privacy Rule protects the individually identifiable health > information about a decedent for 50 years following the date of death of > the individual. " > from here: > > http://www.hhs.gov/ocr/privacy/hipaa/understanding/coveredentities/decedents.html > > On 10/27/15 9:22 PM, Brooks Family wrote: > > My hospital's Compliance department has very adamantly informed me > > that HIPAA does not expire with the patient. > > > > And study patients are under a whole different set of rules. > > > > On 10/27/15 9:20 PM, Sam Sloan wrote: > >> The privilege of patient confidentiality disappears once the person > >> dies. > > > > > ------------------------------- > To unsubscribe from the list, please send an email to > GENEALOGY-DNA-request@rootsweb.com with the word 'unsubscribe' without > the quotes in the subject and the body of the message >

Sloan, Just for your information, since you mention using the stored DNA of deceased individuals at FTDNA for upgrading to tests that would suit your own private interests you should be aware that FTDNA addresses this under Legal Issues and Privacy at https://www.familytreedna.com/privacy-policy.aspx: To wit: "The owner of an account is responsible for naming a beneficiary to that account, should the test taker pass away. If no beneficiary is named on the account, Family Tree DNA retains *ownership of the record and DNA*." So the fact is you will have to negotiate rights to privacy with FTDNA who is the owner of the data regardless of your opinion that one can "assume that anybody who submitted their DNA sample wants to find their relatives and therefore would have agreed to this were they still alive." You know nothing about what they would have agreed to, nor is it pertinent. You have to deal with the wishes of the beneficiary or with FTDNA. Instead of arguing with Brooks, or this list, I suggest you contact the management at FTDNA and discuss the issue with them directly. Richard On Tue, Oct 27, 2015 at 9:06 PM, Sam Sloan via <genealogy-dna@rootsweb.com> wrote: > This useful site is about health information. > However, here we are referring to genealogical or family history > information such as a Family Tree. Surely you are not saying that a Family > Tree cannot be published without the permission of everybody who is on the > tree. > > Here we are talking about people who joined these groups and submitted > their DNA samples for the purpose of finding their relatives or health > information about their relatives. > > There are several categories of cases. For example, I am a member of the > Sloan Surname Project here: > > https://www.familytreedna.com/public/sloan/default.aspx?section=yresults > > I have one of the lowest numbers so it seems that I was one of the earliest > members. My number is 13599. You can see my name about 2/3rd way down the > side. > > However, this group is almost dead. Nobody has joined in a long time. I am > not even sure if the administrators are still around. > > The people who joined this group joined before the Family Finder Tests > existed and before gedmatch.com was created. However, their DNA samples > are > in storage and will still be good for 25 years. I have checked and not a > single member of this group of 66 persons has uploaded to gedmatch.com > other than myself. Obviously, the reason for this is these people joined a > long time ago and have not kept up to date or else they are dead. > > I would gladly pay the fees required to give those these tests show are > closely related to me to give them a longer Y-DNA test plus the Family > Finder test and upload it to gedmatch.com I do not see why I should not be > allowed to do that. > > Sam Sloan > > > > > On Tue, Oct 27, 2015 at 8:42 PM, Brooks Family via < > genealogy-dna@rootsweb.com> wrote: > > > " The HIPAA Privacy Rule protects the individually identifiable health > > information about a decedent for 50 years following the date of death of > > the individual. " > > from here: > > > > > http://www.hhs.gov/ocr/privacy/hipaa/understanding/coveredentities/decedents.html > > > > On 10/27/15 9:22 PM, Brooks Family wrote: > > > My hospital's Compliance department has very adamantly informed me > > > that HIPAA does not expire with the patient. > > > > > > And study patients are under a whole different set of rules. > > > > > > On 10/27/15 9:20 PM, Sam Sloan wrote: > > >> The privilege of patient confidentiality disappears once the person > > >> dies. > > > > > > > > > ------------------------------- > > To unsubscribe from the list, please send an email to > > GENEALOGY-DNA-request@rootsweb.com with the word 'unsubscribe' without > > the quotes in the subject and the body of the message > > > > ------------------------------- > To unsubscribe from the list, please send an email to > GENEALOGY-DNA-request@rootsweb.com with the word 'unsubscribe' without > the quotes in the subject and the body of the message >