Janis, I can understand your euphoria. I'm tickled they finally found something that works. I'm a mess. I fractured 3 vertebrae when I was about twenty. Top <cervical>, middle, and bottom. (I never bothered to remember what number they are, but boy howdy, I can point at any given time to right where they are.) With the right leg being so much shorter, (do to another fracture) it puts tremendous stress on my back. I wear a lift in my shoe, but it's a Band-Aid approach at best. Now my bones have become soft and my spine is compressing. Just when I thought it couldn't get worse. <G> My back is in almost constant spasm. the moments when nothing hurts are rare. Then with this knee deal, I'm about whipped. Of course it was my left leg, which was pretty much my good leg up until then. <LOL> It started doing a crazy thing even before the fall though, it will spasm and shake for 5 or 6 seconds, involuntarily out of the clear blue. Sometimes repeatedly. It is happening more and more often and driving me up the wall. Hurts like hell with the knee fracture and the cramping afterwards. All that wire and pins and screws prefer to be left alone, not shaken violently. Sleep~? Fahgedahbowdit~! I have always been fairly stoic where pain is involved and have a pretty high threshold, but I am about done with this day in day out ordeal. Uncle all ready for Pete's sake. There has to be something that can be done.......some relief ?? Didn't mean to rant. Looking forward to seeing you around more Turklet. :-) {{{{{{{{{{{{{{{{{Janis}}}}}}}}}}}}}} kaffie It's a strange combination, sweetie. I'm taking neurontin. That's a drug usually prescribed for epilepsy. However, the docs working with MS patients discovered it controls severe cramping pain. That describes my back to a tee. 3 days ago I couldn't walk well or sit here or do anything but lay on a heating pad. Today I'm playing with wild snakes again. I'm also using the lidocane patch. That's another gift from heaven. The middle fractures, L4 and L5, are the pain producers. The patch knocks out the pain. What a joy to be able to function again!! Honest, I've been nothing but an invalid until now. That's why I haven't been here much. Uh oh!! I'm back!! (((((((((((((((Kaffie)))))))))))))) Turkles Kath wrote: > LOL~! :-) Turkie Gal, when I read the subject line, I *knew* this was gonna have something about critters in it. :-) > Sounds like almost way too much fun. :-) > Great to hear of your adventure. > What are those new meds by the way.....I think I'd like to give them a try. > HUGS, > kaffie

Kaffie sweetie, one day about a month ago I was dead serious about why bother going on! I can't lift over 10 pounds and I have two grands that are more than double that. I couldn't cook, read, concentrate, nothing! Like why bother? I'm only comfortable now because I turned into a savage patient. Fix it or I'll KILL you!! If you are spazing, I'd ask for the neurotin. And the patchs. By gum they work! And I know how much the pins and screws object to being shaken around. *G* Got more than a few myself. Hey, want to have some fun? Let's fly somewhere!! I want to see us get through security. We'd set off every bell and whistle in the airport! LOL Oh, and don't metion soft bones! For that, get fosamax. It rebuilds bones. Another prescription. And take cod liver oil pills with the calcium. It absorbs more completely with the vitamin D in the diet. Just ask Doc Turk cause I'm doing the same thing. This stupid keyboard is sticking! Especially the nnn nn LMBO Makes for some funny spelling!! Turkles Kath wrote: > Janis, I can understand your euphoria. > I'm tickled they finally found something that works. > I'm a mess. I fractured 3 vertebrae when I was about twenty. Top <cervical>, middle, and bottom. (I never bothered to remember what number they are, but boy howdy, I can point at any given time to right where they are.) > With the right leg being so much shorter, (do to another fracture) it puts tremendous stress on my back. I wear a lift in my shoe, but it's > a Band-Aid approach at best. Now my bones have become soft and my spine is compressing. > Just when I thought it couldn't get worse. <G> > My back is in almost constant spasm. the moments when nothing hurts are rare. > Then with this knee deal, I'm about whipped. Of course it was my left leg, which was > pretty much my good leg up until then. <LOL> It started doing a crazy thing even before the fall though, > it will spasm and shake for 5 or 6 seconds, involuntarily out of the clear blue. Sometimes repeatedly. > It is happening more and more often and driving me up the wall. > Hurts like hell with the knee fracture and the cramping afterwards. > All that wire and pins and screws prefer to be left alone, not shaken violently. Sleep~? Fahgedahbowdit~! > I have always been fairly stoic where pain is involved and have a pretty high threshold, but I am about done with > this day in day out ordeal. Uncle all ready for Pete's sake. > There has to be something that can be done.......some relief ?? > Didn't mean to rant. > Looking forward to seeing you around more Turklet. :-) > {{{{{{{{{{{{{{{{{Janis}}}}}}}}}}}}}} > kaffie

LOL~! :-) We would shut down the metal scanner~! :-) Caleb has a titanium rod in his leg and told the airport security guard in a stage whisper, "I got a rod". LOL The security guy got the strangest look on his face. I jumped in quick and explained what he meant. I know I've told that before. LOL :-) Oh well, I don't get out much anymore. :-) I need some of those savage patient skills. :-) Savage Patient 101 LOL :-) The soft bones are from the OI. It affects the collagen. So any place in the bod that has Collagen has problems. I will certainly check out the fosamax. Calcium supplements don't work, cause the collagen is the problem and the bones are the result. Extra calcium just gets thrown off and creates lovely kidney stones. <joy> I feel better today. Cut on my hair and that always perks me up. I did a crappy job of it, but hey, can't have evrything. <heehee> :-) Thanks for letting me rant Dr. T. :-) {{{{{{{{{{{{{Janis}}}}}}}}}}}}}}}} kaffie Kaffie sweetie, one day about a month ago I was dead serious about why bother going on! I can't lift over 10 pounds and I have two grands that are more than double that. I couldn't cook, read, concentrate, nothing! Like why bother? I'm only comfortable now because I turned into a savage patient. Fix it or I'll KILL you!! If you are spazing, I'd ask for the neurotin. And the patchs. By gum they work! And I know how much the pins and screws object to being shaken around. *G* Got more than a few myself. Hey, want to have some fun? Let's fly somewhere!! I want to see us get through security. We'd set off every bell and whistle in the airport! LOL Oh, and don't metion soft bones! For that, get fosamax. It rebuilds bones. Another prescription. And take cod liver oil pills with the calcium. It absorbs more completely with the vitamin D in the diet. Just ask Doc Turk cause I'm doing the same thing. This stupid keyboard is sticking! Especially the nnn nn LMBO Makes for some funny spelling!! Turkles Kath wrote: > Janis, I can understand your euphoria. > I'm tickled they finally found something that works. > I'm a mess. I fractured 3 vertebrae when I was about twenty. Top <cervical>, middle, and bottom. (I never bothered to remember what number they are, but boy howdy, I can point at any given time to right where they are.) > With the right leg being so much shorter, (do to another fracture) it puts tremendous stress on my back. I wear a lift in my shoe, but it's > a Band-Aid approach at best. Now my bones have become soft and my spine is compressing. > Just when I thought it couldn't get worse. <G> > My back is in almost constant spasm. the moments when nothing hurts are rare. > Then with this knee deal, I'm about whipped. Of course it was my left leg, which was > pretty much my good leg up until then. <LOL> It started doing a crazy thing even before the fall though, > it will spasm and shake for 5 or 6 seconds, involuntarily out of the clear blue. Sometimes repeatedly. > It is happening more and more often and driving me up the wall. > Hurts like hell with the knee fracture and the cramping afterwards. > All that wire and pins and screws prefer to be left alone, not shaken violently. Sleep~? Fahgedahbowdit~! > I have always been fairly stoic where pain is involved and have a pretty high threshold, but I am about done with > this day in day out ordeal. Uncle all ready for Pete's sake. > There has to be something that can be done.......some relief ?? > Didn't mean to rant. > Looking forward to seeing you around more Turklet. :-) > {{{{{{{{{{{{{{{{{Janis}}}}}}}}}}}}}} > kaffie ==== FOLKLORE Mailing List ==== "Folklore Family" Listresses Missi Richiele3@aol.com & Kath Mzmouser@attbi.com »§«:*´`³¤³´´`*:»§«:*´`³¤³´`*:»§«:*´`³¤³´´`*:»§«:*´`³¤³´`*:»§«