COVER:- (type much larger) GENETICALLY INHERITED DISEASES Submission to the Expert Panel on Release of Historic Census Records Prepared by MURIEL M. DAVIDSON 25 Crestview Avenue Brampton, ON L6W 2R8 April 20, 2000 ============================== GENETICALLY INHERITED DISEASES CONTENTS Personal Family Diseases Multiple Sclerosis ........... 2 Brain Tumors ............... 3 Macular Degeneration ........ 3 Cancer ....................... 3 Arthritis and Osteoporosis .. 3 Diseases by way of Adoption . 4 Alzheimer’s Disease ................. 6, 7 Depression ......................... 8 - 13 Strabismus ......................... 13 Diabetes and Prolonged Q-T Syndrome. 14, 15 Fabry’s Disease .................... 16, 17 Unknown to date .................. 18 Amyotrophic Lateral Sclerosis (ALS). 19 - 21 Breast Cancer ...................... 22 ========================================== Letter:- 25 Crestview Avenue Brampton, Ontario L6W 2R8 April 20, 2000 Expert Panel on Access to Historical Census Records 25-B, R.H. Coats Building Ottawa, Ontario K1A 0T6 Esteemed Members of the Expert Panel: Re: Genetically Inherited Diseases Submission Many family researchers have found potential "TIME BOMBS" in the familial data they have collected. I have been one of these researchers, and suggested a combined submission about Genetically Inherited Diseases. Many have submitted suggestions, and I have tried to include a cross-section of known inherited diseases. We have used all sources of proven and true research papers, and all agree the only true picture of the lives of our ancestors is within the Canadian census records. We are very anxiously and hopefully awaiting the release of the 1911 records in 2003 – we only wish we would be able to view later census records within a short time for medical reasons. Families with inheritable diseases/genes live from day to day – one never knows when the disease will pounce again … that is the way we feel. The internet has provided much information about ALS, Q-T Syndrome, Paget’s Disease, Alzheimer’s, Osteoporosis, Depression, Diabetes and others – but it is the daily personal living in fear, not knowing how far back the defective gene was in action. Personally, I was fortunate to have family history from my grandfather; he gave me information as he knew it, and I have found he was correct. Ironically, I am unable, at the present time, to learn the information my grandfather provided for the 1911 census. Citizens of Canada, plus many with Canadian roots, anxiously await your report. We sincerely hope all members of the Expert Panel will be in favor of census release, not just for family trees, but for important medical records. Being able to provide our doctors with substantiated records would save long waiting periods prior to a diagnosis, as happened to my youngest brother, now 61, a victim of Multiple Sclerosis for 37 years. Many thanks for working as members of this very important committee, Sincerely, Muriel M. Davidson <davidson3542@home.com> 1-905-451-3542 ============================ Cover, Contents and Letter of my submission to the Expert Panel. Sincerely hope it is, as Senator Lorna Milne stated, the "straw that breaks the non-release of our Canadian census records". Apologies for what happens after the memo was Sent -- if anyone wishes to save it, simply Send it back to yourself -- line up various parts, and print. Other pages to follow. Muriel M. Davidson <davidson3542@home.com> Check for THE MYTHS OF CENSUS by Gordon Watts at:- <http://www.geocities.com/Heartland/Farm/7843/poll.html> <http://www.waynecook.com/simcoe.shtml>