Submission Request re Genetically Inherited Diseases To Members of the Expert Panel:- I have two brothers with a disease that the doctors say is passed on in the family. My oldest brother has had this since age 6 weeks and is 47 now. The family has many times been told because of the high temps and swollen spleen and all the rest that he would not make it through the night. He spent most of his young life in hospital and away from home. He was a medical ? in Canada and the United States till he turned about 18 years old. My other brother started with differing symptoms and was diagnosed later in teen years. Both are under treatment and will be all their life when an attack occurs and we are looking for where and when in the gene pool this was introduced. They say of all who have this it can be traced to Jewish background. It could have been way back when but it could have been within 100 years. This is what got me started on tracing family history and I am staggered at the opposition to release of census due to the stumbling blocks that it puts in front of me. It is hard enough researching and hitting brick walls. I understand the dilemma because of working the census for over 25 years but a date of 100 years would be sufficient for protection of material. Just how many live beyond 100? A few – but I am sure the ones that do would not worry as that is the past. Sincere regards, Elizabeth (Name Withheld) ======================================= I will obtain the name of the disease and post it. The next posting will be ALS - very long -- it is a disease of "being trapped in a body" -- more tomorrow. Muriel M. Davidson <davidson3542@home.com>