Kindest Regards, Wayne Gearey geareyw@cadvision.com ----- Original Message ----- From: Wayne N. Gearey <geareyw@cadvision.com> To: <CANADA-CENSUS-CAMPAIGN-L@rootsweb.com> Sent: Tuesday, May 02, 2000 7:14 PM Subject: Fw: [CCC-L] Genetically Inherited Diseases - Depression - Part 1 > > Kindest Regards, > Wayne Gearey > geareyw@cadvision.com > ----- Original Message ----- > From: Muriel M. Davidson <davidson3542@home.com> > To: <CANADA-CENSUS-CAMPAIGN-L@rootsweb.com> > Sent: Wednesday, May 03, 2000 5:08 AM > Subject: [CCC-L] Genetically Inherited Diseases - Depression - Part 1 > > > > DEPRESSION > > > > By Muriel M. Davidson > > > > The weather is very damp and the sky is without a hint of sun! > > How often have we remarked or heard others say the "day is depressing!" > > However, as soon as the sun warms the earth, which lightens our moods, > > the depressive feeling disappears. Many are not so fortunate as he or > > she > > suffers from a disease caused by a possibly inherited gene, not the > > weather. > > I am referring to an honest-to-goodness illness -- clinical > > depression. > > This disease, unrecognized by many, is probably the biggest single > > medical cause behind most human sufferings and illnesses. This > > condition > > strikes as many as one of every five persons. Very often many who > > suffer > > from this common malady are undiagnosed. The victims of this > > genetically inherited disease are generally regarded as strange, > > weird, > > often unable to associate with others, which compounds and increases > > the problem. > > Personally I am one of the fortunate ones with diagnosis years > > ago. > > My two sons have also been diagnosed, but my daughter did not inherit > > this gene, nor did her children. There have been other family members > > known from previous generations. > > Sufferers of depression are all around us -- the homeless, the > > alcoholic, > > those trying to survive within the confines of society. The ailment has > > no > > class distinction, is a genetically inheritable disease -- very often > > family > > doctors prescribe sedating medication. > > There is still an age-old fear of psychiatrists -- often the > > patient is > > simply not referred. Close relatives refuse to accept the family member > > is a victim of an ancient gene, therefore not realizing the > > psychological > > condition is treatable not only by suitable medication, but mainly > > family understanding. > > Many with clinical depression, unlike the gloomy day > > depressives, > > often resort to alcohol, drugs, resorting to crime so more expensive > > drugs can be obtained. This is the way of dealing with how he or she > > feels. > > Many of the young people who commit suicide or fill our jails and > > prisons are victims of this age-old mood inhibitor. Although many > > have a high degree of intelligence, due to depression, they are > > unable to make friends, become loners and eventually many do > > commit suicide. > > - 8 - > > ----------------------------- > > Depression - Continued: > > > > The gene that causes clinical depression dates back to the cave > > age, is ancient and is not a mutant gene. Depressed brains do not > > function properly, very often there is a chemical imbalance. The > > inability to function properly is similar to brain wires being cut -- > > preventing the transmission of emotions and rational thoughts. > > The victims feel empty, unable to think, often unable to remain > > employed. An example of non-functioning brain wires is the inability > > to send an internet message when the server is unoperational. > > Many family researchers have studied Canadian census records > > of 1871, 1881, 1891and 1901 -- we are grateful for some of the > > personal questions asked by enumerators when it seems a family > > member "disappeared" -- yet still living. Working with church records, > > we find there generally is NO recorded trace of the relative's > > disappearance among our census records. > > Years ago, in my family, as in many other families, family members > > were admitted to the "county home" or "poor farm". with personal > > family history denoting a mental disorder. This disorder was possibly > > a form of depression -- unrecognized years ago. > > The family members disappeared without a trace because > > census records WERE NOT taken of institutional residents. Although > > alive, they were not included, unless residing in a community and > > he or she were listed as having a mental disability. We are thankful > > these intrusive questions were asked by the enumerators -- there is > > acceptance in knowing. > > My family members know I suffer from depression, have refused > > medication, but prefer my own "treatment" -- keep busy and active. > > I have accepted depression, part of the healing process -- often > > reading or crocheting is better than routine household chores. > > Part of my personal treatment is a great deal of "people contact":- > > > > 1. Coordinator of 150 knitters for Brampton Memorial Hospital > > maternity ward, a volunteer position -- my daughter is my "boss". > > 2. Eight family history books researched, printed and filed at National > > Archives. > > 3. Public relations for my Rebekah lodge, IOOF. > > 4. Recently serving as liaison for 31 local Brampton service clubs > > with the local city newspaper, where I had been women's editor. > > This is a challenge -- a first!! > > 5. An active member of the internet-based Canadian Census > > Release Committee. > > - 9 - > > ------------------------- > > Depression - Continued:- > > > > My two sons combat their depressive problems differently. > > The oldest son is in sales and administration at a large motorcycle > > shop, races motorcycles and gets rid of any nagging problems > > at the gym. > > The youngest son, a long-distance truck driver, has a chemical > > imbalance. He combats SADD by turning on lights to counteract > > lack of sun and Vitamin D, plus medication. > > In summary, many who suffer from depression could live a > > normal community life through acceptance. People need to be > > accepted for "what they can do" -- not "what they have". This is > > one strong way of living with a disease that dates back to the > > early days of mankind. > > As an active member of the internet-based Canadian Census > > Release Campaign, it is out sincere hope the Expert Panel will > > report favorably to have the 1911 and future Canadian census > > records made available for research by families faced with > > Genetically Inheritable Diseases. Many are anxiously awaiting > > your report. > > Thank you for serving on this appointed committee. > > > > Sincerely, > > > > Muriel M. Davidson > > 25 Crestview Avenue > > Brampton, ON L6W 2R8 > > <davidson3542@home.com> > > > > > > > > > > > > > > > > > > > > Depression - Continued:- > > > > The young people of today are intelligent, want to know family answers. > > Many > > denominational avenues of research are unavailable. It is for this > > reason the most accurate > > of all documents, our Canadian census records, must be released and made > > available to all. > > It is only through usage of the Post-1901 census records, young > > researchers will > > learn of any possibly inherited mental illness, to include depression. > > They will then be able > > to deal with it and prepared, so correct diagnosis may be made by our > > modern medical > > system. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >

Kindest Regards, Wayne Gearey geareyw@cadvision.com ----- Original Message ----- From: Muriel M. Davidson <davidson3542@home.com> To: <CANADA-CENSUS-CAMPAIGN-L@rootsweb.com> Sent: Wednesday, May 03, 2000 5:08 AM Subject: [CCC-L] Genetically Inherited Diseases - Depression - Part 1 > DEPRESSION > > By Muriel M. Davidson > > The weather is very damp and the sky is without a hint of sun! > How often have we remarked or heard others say the "day is depressing!" > However, as soon as the sun warms the earth, which lightens our moods, > the depressive feeling disappears. Many are not so fortunate as he or > she > suffers from a disease caused by a possibly inherited gene, not the > weather. > I am referring to an honest-to-goodness illness -- clinical > depression. > This disease, unrecognized by many, is probably the biggest single > medical cause behind most human sufferings and illnesses. This > condition > strikes as many as one of every five persons. Very often many who > suffer > from this common malady are undiagnosed. The victims of this > genetically inherited disease are generally regarded as strange, > weird, > often unable to associate with others, which compounds and increases > the problem. > Personally I am one of the fortunate ones with diagnosis years > ago. > My two sons have also been diagnosed, but my daughter did not inherit > this gene, nor did her children. There have been other family members > known from previous generations. > Sufferers of depression are all around us -- the homeless, the > alcoholic, > those trying to survive within the confines of society. The ailment has > no > class distinction, is a genetically inheritable disease -- very often > family > doctors prescribe sedating medication. > There is still an age-old fear of psychiatrists -- often the > patient is > simply not referred. Close relatives refuse to accept the family member > is a victim of an ancient gene, therefore not realizing the > psychological > condition is treatable not only by suitable medication, but mainly > family understanding. > Many with clinical depression, unlike the gloomy day > depressives, > often resort to alcohol, drugs, resorting to crime so more expensive > drugs can be obtained. This is the way of dealing with how he or she > feels. > Many of the young people who commit suicide or fill our jails and > prisons are victims of this age-old mood inhibitor. Although many > have a high degree of intelligence, due to depression, they are > unable to make friends, become loners and eventually many do > commit suicide. > - 8 - > ----------------------------- > Depression - Continued: > > The gene that causes clinical depression dates back to the cave > age, is ancient and is not a mutant gene. Depressed brains do not > function properly, very often there is a chemical imbalance. The > inability to function properly is similar to brain wires being cut -- > preventing the transmission of emotions and rational thoughts. > The victims feel empty, unable to think, often unable to remain > employed. An example of non-functioning brain wires is the inability > to send an internet message when the server is unoperational. > Many family researchers have studied Canadian census records > of 1871, 1881, 1891and 1901 -- we are grateful for some of the > personal questions asked by enumerators when it seems a family > member "disappeared" -- yet still living. Working with church records, > we find there generally is NO recorded trace of the relative's > disappearance among our census records. > Years ago, in my family, as in many other families, family members > were admitted to the "county home" or "poor farm". with personal > family history denoting a mental disorder. This disorder was possibly > a form of depression -- unrecognized years ago. > The family members disappeared without a trace because > census records WERE NOT taken of institutional residents. Although > alive, they were not included, unless residing in a community and > he or she were listed as having a mental disability. We are thankful > these intrusive questions were asked by the enumerators -- there is > acceptance in knowing. > My family members know I suffer from depression, have refused > medication, but prefer my own "treatment" -- keep busy and active. > I have accepted depression, part of the healing process -- often > reading or crocheting is better than routine household chores. > Part of my personal treatment is a great deal of "people contact":- > > 1. Coordinator of 150 knitters for Brampton Memorial Hospital > maternity ward, a volunteer position -- my daughter is my "boss". > 2. Eight family history books researched, printed and filed at National > Archives. > 3. Public relations for my Rebekah lodge, IOOF. > 4. Recently serving as liaison for 31 local Brampton service clubs > with the local city newspaper, where I had been women's editor. > This is a challenge -- a first!! > 5. An active member of the internet-based Canadian Census > Release Committee. > - 9 - > ------------------------- > Depression - Continued:- > > My two sons combat their depressive problems differently. > The oldest son is in sales and administration at a large motorcycle > shop, races motorcycles and gets rid of any nagging problems > at the gym. > The youngest son, a long-distance truck driver, has a chemical > imbalance. He combats SADD by turning on lights to counteract > lack of sun and Vitamin D, plus medication. > In summary, many who suffer from depression could live a > normal community life through acceptance. People need to be > accepted for "what they can do" -- not "what they have". This is > one strong way of living with a disease that dates back to the > early days of mankind. > As an active member of the internet-based Canadian Census > Release Campaign, it is out sincere hope the Expert Panel will > report favorably to have the 1911 and future Canadian census > records made available for research by families faced with > Genetically Inheritable Diseases. Many are anxiously awaiting > your report. > Thank you for serving on this appointed committee. > > Sincerely, > > Muriel M. Davidson > 25 Crestview Avenue > Brampton, ON L6W 2R8 > <davidson3542@home.com> > > > > > > > > > > Depression - Continued:- > > The young people of today are intelligent, want to know family answers. > Many > denominational avenues of research are unavailable. It is for this > reason the most accurate > of all documents, our Canadian census records, must be released and made > available to all. > It is only through usage of the Post-1901 census records, young > researchers will > learn of any possibly inherited mental illness, to include depression. > They will then be able > to deal with it and prepared, so correct diagnosis may be made by our > modern medical > system. > > > > > > > > > > > > > > >

ALZHEIMER’S DISEASE (Name Withheld) Subject: My Letter on Genetic Disease for the Expert Panel Dear Panel Members: One year ago my sister and I buried our mother. The feelings of loss when a parent dies are no doubt familiar to those on the panel, but I believe the end of her life must have seemed a blessing to my mother as it ended seven years of suffering and loss. My mother was another victim of Alzheimer's disease. Watching my mother slowly reduced from a healthy and independent woman looking forward to enjoying the remaining years allotted her to a confused and fearful person, stripped of dignity and spirit and with seemingly no capacity to enjoy even the simplest things, was painful beyond description for those of us who loved her. Only those who have gone through it can possibly understand. But our sadness would not have been unfamiliar to my mother. My aunt manifested the symptoms of this illness six years before her and she had to watch her suffering as well. In 1956 they buried their mother after years of coping with the burden of caring for my grandmother during her long battle with that same terrible disease. Our grandmother carried her own memories of the effects of Alzheimer's disease on a family as she, as the youngest daughter, carried the responsibilities of caring for her own mother in the last years of her life -- another victim of that disease. I have since learned that I have had great-uncles and great-aunts and cousins as well die from the effects of this nasty form of dementia. It is now beyond question that this disease is in some way being genetically handed down in our family and the fate of my mother, grandmother, and great-grandmother MAY VERY WELL BE MY OWN. There is but one hope for myself and the younger members of our family: the cause of this form of genetically transmitted Alzheimer's Disease must be found and research for a cure must be pursued. I am doing what I can. - 6 - ------------------------------------------- Alzheimer’s Disease - Continued:- As a genealogist I have undertaken the sometimes difficult and frustrating work of compiling my family tree by gathering information from public, private, and family records and memory and turning that family tree into a medical pedigree of sufficient detail and depth that it will be useful as a research tool for genetic scientists seeking the causes and the cure of this terrible disease. Such medical family trees are the bedrock of research into the causes of almost every disease known to be genetic in origin. Already large family trees have proven the key to uncovering the genes that cause Huntington's Chorea, Cystic Fibrosis, Muscular Dystrophy, and dozens of more common diseases such as types of cancer, diabetes, and heart disease. Canada has been among the leaders in this type of genetic research and many similar studies using family trees are underway across the country. But more needs to be done. I am hoping to offer, with the full knowledge and blessing of family members, our family tree to genetic scientists studying familial Alzheimer's disease in the hope it will lead to progress and bring future relief to the tens of thousands of Canadians who face this disease. When my tree is converted to a medical pedigree all identifying information is stripped from it making it anonymous so it may safely be shared with the medical community. I fear the disease more than I fear the remote possibility of my privacy being violated. Compiling a family tree as accurate and complete as I have done would not have been possible without access to Canada's historical census records. The loss of such future access will significantly damage both genealogy and research into genetic diseases of that there is no doubt in my mind. I feel the privacy violation, if it can even be remotely considered as such, of granting to historians and genealogists access to census records after 92 years is little to ask for so large a gain. I do not accept that the supposed privacy when the rights of the dead take precedence over the right of the living to enjoy healthy and productive lives. I respectively ask the panel not to forget the real consequences on the lives of hundreds of thousands of Canadian men, women, and children suffering genetic diseases now and in the future if historical censuses are closed or destroyed. THEY DESERVE A VOICE IN THIS DEBATE. Thank you. Sincerely, Name Withheld Address/Email Withheld - 7 - ================================ To all:- The CAPITAL letters replace the bold type used in the printed submission. Comments are welcomed and will be saved -- names will not appear in print, as above. Muriel M. Davidson <davidson3542@home.com> Look for THE MYTHS OF CENSUS by gordon A. Watts <http://www.geocities.com/Heartland/Farm/7843/poll.html>

Thank you Muriel for your moving submission to the Expert Panel. It may interest people that pre-1949 census records from Newfoundland are being used by researchers to trace specific diseases, do gene research and hopefully develop drugs to help or prevent the diseases. The Globe and Mail had an article on January 5, 2000 that reported on this. It mentioned that the privacy laws in Newfoundland did not prohibit the use of census data to trace families, there has been a constant pool of people in the province and there are also good medical records. The article said "Newfoundland's mix of good medical records and accurate genealogies is unique in Canada and nearly unique in the world. . . In the BBS study, six Newfoundland families yielded more useful data than 91 BBS families in the rest of North America" The article went on to state this type of research could lead to high-paying scientific and technical jobs in Newfoundland. In my letter to Mr. Manley I mentioned this and another article on the use in Britain of census records along with babies' birth rates from hospital records to identify mothers who might be at risk of a heart attack. Of course my letter was passed on to the Expert Committee from which I received a polite form letter. Ruth Dibbs

Greetings All. FYI the following is an email that I sent to all Senators for whom I was able to obtain email addresses -- 62 out of 100. I have started getting some responses this morning. Senator Carstairs will support Bill S-15. When I manage to get the Post 1901 Census Project web pages updated I have been giving some thought to adding a scoreboard for Senators - will see what happens in the future. Gordon --------------------------------------------- To All Senators I give greetings. This message is being sent to all Senators of Canada for whom I have been able to obtain email addresses. Unfortunately only 62 of the 100 Senators listed on the government website have email addresses available. One might have thought that in this age of electronic enlightenment, all Senators would have access to email. That, however, is a subject for another day. Please feel free to copy this message and the attachments to those Senators who do not have access to email. By way of introduction I will advise that I am one of the leaders of a campaign on the Internet seeking Public access to Post 1901 Census records after a reasonable period of time, as provided for by the Privacy Act of Canada. I am sure that many, if not all, Senators have been contacted by citizens of Canada and are aware of our campaign. At the very least you will be aware of Senator Lorna Milne's Bill S-15 currently in second reading in the Senate. Statistics Canada, because of a misinterpretation of a Statute passed in 1905 refuses to transfer control of Post 1901 Census records to the National Archives, thus preventing them from being accessible by the public after the 92 year period mandated in Regulations pertaining to the Privacy Act. Their position is based upon a "promise" of everlasting confidentiality they claim was given by the government of Sir Wilfred Laurier. Statistics Canada has widely distributed handouts referring to this so called "promise". One such handout was titled "Access to 1911 and other Post-1901 Census Records". It was widely quoted by a number of MPs responding to questions from their constituents. Those MPs responding in this manner obviously accepted at face value what Statistics Canada and Privacy Commissioner Bruce Phillips have said regarding this "promise". They made no attempt to seek out the truth of the matter. I have asked both Statistics Canada and Privacy Commissioner Bruce Phillips to "show me the promise" upon which their position of non-disclosure is entirely based. To date they have been unable to do so -- simply referring me to the Statutes of 1901/1906, and Instructions to Census Officers and Enumerators of Census for that time period. I can state categorically that at no place in these Statutes and Instructions, nor in any Statutes or Instructions since then, is there any mention of a "promise" that confidentiality of information given by respondents to Census will last "forever". The "promise" does not exist. On 12 November 1999 an Expert Panel to study Access to Historic Census Records was appointed with a mandate to bring down a report containing recommendations by 31 May 2000. In an effort to inform and educate, or at least cause Senators to think about the issue, I have attached to this message the files containing my printed submission to the Expert Panel. Titled "The Myths of Census", this submission is the result of considerable research of the pertinent sources of information relating to the matter at hand. These sources, among others, include: All Statutes relating to Census and Statistics from 1870 to the present . Most Instructions to Officers and Enumerators of Census from 1871 to 1941. Extracted Debates of the House of Commons and the Senate for 1879, 1905 and 1918 Many Proclamations and Orders in Council published in The Canada Gazette Extract from Archivaria 45 (Fall 1998) -- "Counting the Archives In: The appraisal of the 1991 Census of Canada" by Jean-Stephen Piche and Sheila Powell Extract from Canadian Public Administration (Vol. 20, No. 3, pp 481-498) -- "Access to historic census data in Canada: a comparative analysis." by David H. Flaherty Report of the Australian House of Representatives Standing Committee on Legal and Constitutional Affairs titled "Saving Our Census and preserving our history (May 1998)" I urge each Senator to read my submission to the Expert Panel, the submission of the Canadian Historical Association which is posted on the web pages of Statistics Canada, and any other submissions to which you might have access. Read these submissions, and think about the issues involved. The report of the Expert Panel on Access to Historical Census is due by the end of May. It is hoped that their recommendation will be to allow public access of Historic Census records. Bill S-15 is a Bill that should satisfy the concerns of all. I urge all Senators to vote in favour of Bill S-15 In this regard I would ask each of you the following question: Would you, as a Member of the Senate of Canada, vote FOR or AGAINST a Bill supporting release to the Public of Post 1901 Census Reports after 92 years, starting with the 1906 Census? I would welcome any comments or questions you might have regarding my submission to the Expert Panel. To the Francophone Senators I extend my apologies for not sending this message and the attached files in the French language. I regret that I am not bilingual and neither read, nor write, French. Thank you. Gordon A. WATTS gordon_watts@telus.net Port Coquitlam, BC ICQ # 9183352 Keep up to date on Post 1901 Census information at http://www.globalgenealogy.com/census and http://www.geocities.com/Heartland/Farm/7843/poll.html Download and circulate Post 1901 Census Petitions now from http://www.globalgenealogy.com/census/petition.htm

To all:- A sincere apology for the manner the submission reacted to Rootsweb!!! I had sent it to myself several times, even used Drafts -- all seemed fine. Headings were in Black, print was Times New Roman, 12 pt. By saving it to an A:\ disk, one can easily fix up the lines. Muriel <davidson3542@home.com>

GENETICALLY INHERITED DISEASES PERSONAL FAMILY DISEASES By Muriel M. Farquhar Davidson, U.E. Family researchers, searching for roots of their past, became aware of the possible non-release of Post-1901 Canadian census records years ago. In 1993, when the 1901 Canadian census was released, the fact was re-emphasized it might be the last release. The 1901 Canadian census records were the first to include dates of birth, adding to one’s family history. It was not until I became an internet user in November 1998 that I learned the full extent of the governmental problem. It was evident that, unless records were released for family research -- not just for governmental statistical records -- the Canadian public would lose 100 years of their history. Canadian census records concern all residents of Canada, as well as many from other countries who have Canadian roots. As one of many family researchers poring over various types of documents, I have found there are none as historically correct as our census records, thus forming a glowing montage of life years ago. There have been protests against release of records for family research -- citing both Privacy and Statistics Acts. Due to family pride taught by my grandfather, I feel very certain he would be pleased I could hopefully learn the information he gave the government in 1911. PERSONAL RESEARCH My personal research for over forty years include much more than money earned or bushels of wheat. Research for my family has also included United States census records of 1900, 1910, 1920 and extracts from 1930 as my mother and her sisters were born in Maine. My main requirements are locality, names, ages, origins, religion, occupation and, if given, medical data. Questions asked by enumerators on the 1911 census included categories of deaf, dumb, blind, insane, disabled also employed or unemployed. The answers to some of these questions have to be painstakingly gathered and recorded. These same answers and records affect many today as we check for unknown and possibly inherited diseases. GENETICALLY INHERITED DISEASES Genetically Inherited Diseases, in my belief, are medical problems/genes which have appeared in two or more generations. In some families and diseases, the problem may not show in successive generations, thus becoming known as a "skipper". These diseases are the cause of much heartache in many families, as they have been in mine. I have heard from many via internet during the past 12 months, telling their personal family tragedies. - 1 - ----------------------------------------------- Genetically Inherited Diseases - Continued:- MY PERSONAL FAMILY RECORD The following are my personal record of Genetically Inherited Diseases -- my reason for desiring release of 1911 and subsequent Canadian census records. My avenues of research have included past census records releases, church and funeral home records and obituaries. Other documents include legal papers including deeds, wills, administration of estate -- my files are open to all concerned family members. Some have remarked that "we are never given any problem we cannot handle". It does take effort to keep smiling with the record of Genetically Inherited Diseases in my own personal family. MULTIPLE SCLEROSIS I first learned about this disease, although called by another name, while researching the Loyalist family history of my gr.gr.gr.grandfather, Finley McIntosh. He was a member of the 76th Regiment of Foot, native of Glenelg, Scotland, arrived in Shelburne, Nova Scotia on November 5, 1783, following disbandment in New York City. Finley McIntosh died in 1824, according to church records. Although his estate was not very much compared to today’s standards, his death was well-documented by various papers. I have found a will, probate papers, letters of administration, plus others. The most valuable document was a Request to Administer the estate by a son, William McIntosh. The reason given was:- His mother, the former Christiana Brown, also from Glenelg, Scotland, was aged, infirm, with a severe PARALYTIC condition. Her death is recorded in church records of 1829. This was my first indication of a possibly known and documentable medical condition. CREEPING PARALYSIS The next known family member with this disease, by now known as "creeping paralysis", was my great-aunt Alice Farquhar, my grandfather’s sister. Recorded printed data filed at former Public Archives of Nova Scotia, states an unknown supplier of data submitted the information that my great-aunt had been "crossed in love" by her lover, took to her bed, stayed there for 30 years until she died. This was very untrue, as the family members received help from the so-called lover and his wife, as nursing care was greatly needed. MULTIPLE SCLEROSIS My youngest brother, Clyde R. Farquhar, now 61, was a tall, slim man, 6’ 2" in height, 40 years ago. He was studying to be a chartered accountant, which he achieved and formed his own company. Clyde had never limped, had been lieutenant of his Army Cadet Corps. On one vacation to my home province, Nova Scotia, 39 years ago, I met his wife-to-be -- but also noticed my brother limped. When questioned, he replied "I always walk this way". Clyde and Ruth married, followed by his collapse two weeks later. Ruth’s brother, a medical doctor and hemaetologist, knew of my family concerns. He received positive results for the Multiple Sclerosis tests 37 years ago. - 2 - --------------------------------------- Genetically Inherited Diseases - Continued:- Today, Clyde is wheelchair-bound, but continues to help others by testing new drugs. When he has a physical at Victoria General Hospital site, Queen Elizabeth II Health Science Centre, Halifax, Nova Scotia, he is linked by computer to seven leading medical facilities in United States and Canada. Therefore, his doctor receives guidance from Johns Hopkins, Mayo Clinic and others of that note. Clyde had lost his ability to speak -- among drugs he had tested was one that allowed him to regain control of his throat and speech muscles. I had not heard my brother’s voice until he called me as a birthday present last October -- saying "I’m back!" As he can no longer have life insurance, he invests in real estate in Halifax, with all rentable properties insured and his oldest son as manager. BRAIN TUMORS My tabulated family history of brain tumors only covers 40 years. The list includes people of various ages and seems to be a maternal disease pattern. * One of my mother’s sisters lost two babies -- both with brain tumors. * A brother and his wife lost one little boy, age 13 months -- same illness. * The latest to succumb to a brain tumor was my oldest brother, Donald S. Farquhar, 73, died July 6, 1999. Diagnosis was at Victoria General Hospital, Halifax, in 1998, but due to lack of province-to-province transfer of patients, he was kept waiting for several months. An operation was impossible. Laser treatment was available at London Health Science Centre, London, Ontario -- the Red Cross Society took care of his travel arrangements and housing - again, due to lack of province-to-province patient transfer. During the last few months of his life, the necessary wheelchair and hospital bed cost a great deal - paid by the family. MACULAR DEGENERATION This irreversible eye condition leads to blindness -- again from my maternal family. One aunt, now 98, blind from macular degeneration, hopes to "SEE" her name on the 1911 Canadian census records -- she was born in Bucksport, Maine in 1902. My annual eye checkup includes a check for macular degeneration -- regarded by my doctor, a well-known Brampton eye specialist, as an inheritable disease. CANCER There have been too many cases of this dreaded disease -- from both maternal and paternal families. Many family members have suffered various forms of this illness. Now 75, my first diagnosis was at the age of 21 -- malignant growth to the appendix such as my mother also had at age 21, my daughter at 13. I was 42 when cancer struck again. At present my facial cancer was diagnosed six years ago with facial chemotherapy and periodic consultations. Other familial forms of cancer have included liver, spinal, bowel - but not breast cancer. It is similar to a giant octopus, of which we should be aware, never knowing the next victim. ARTHRITIS AND OSTEOPOROSIS Arthritis seems to have appeared in every family, to more than one person. Some of the arthritic problems are very severe – hampered by non-funding of some drugs in Ontario, e.g. Celebrex and Methothrexate. Non-funding of Fosamax in Ontario for osteoporosis is a disadvantage to all old age pensioners. Paget’s Diseases include some of the above: multiple sclerosis, osteoporosis, arthritis -- there is a great deal on the internet re this subject. - 3 - ------------------------------------ Genetically Inherited Diseases - Continued:- DISEASES IN ADOPTIONS Not all Genetically Inheritable Diseases are passed down from generation to generation -- but unknown to the new parents of an adopted child, the disease comes with the child, having been passed down in the child’s family. One brother and his wife adopted two children. They adopted a boy at first -- no problems. The girl was only nine days old when received, dressed in dirty, ragged clothing which my brother immediately destroyed. Signs of behavioural problems were noted very early, these accelerating as she grew older. After she married, her first baby girl was adopted out in British Columbia, due to a supposedly mental problem. With care, that child is now doing fine, attending university, age 22. Her only son, now 19, became part of my family when he was four years old. He was unable to color pictures, needed toilet-training, and with study, I learned his behaviour problems were the result of Fetal Alcohol Syndrome. My brother, the boy’s grandfather, attempted to learn his adopted daughter’s origin – adoption files were closed even to psychiatrists. The doctors had hoped to learn about my niece’s real parentage. His mother has since been diagnosed as having schziophrenia, now doing fine on medication. TWO HOPES FOR THE FUTURE My youngest granddaughter, 21, knowing the family history, is studying toward a career in medical research. Her hope is to assist with development of a blood test that would show any Genetically Inheritable Diseases. A young couple, contemplating marriage, could be tested, and if tests were positive, they could still marry. However, the couple could decide not to have any children -- thus ending a cycle of genetically inheritable diseases. My only grandson, 19, knows he could possibly inherit the "skipper" MS gene. He changed his future plans from space engineer, like his father -- is now in his second year of biology at Waterloo University and looks forward to being a research doctor. RECOMMENDATIONS 1. A question to be added (or substituted) to the 2001 census questions, asking for people to list known Genetically Inheritable Diseases with a YES or NO. Reason: The present question, " deaf, dumb, blind, insane" and others have been criticized by many. Instead, should I find a YES to any one of these, it would be treated as an answer to a possibly previously unexplained medical condition. 2. At present children being adopted are received in basically the WYSIWYG -- What You See Is What You Get -- manner and adoption system.. Complete medical history of both father and mother (if possible), blood types, known genetically inheritable diseases, should be part of the adoption process. Names of real parents, locality of birth are NOT part of a medical history. 3. Census records of people in institutions of long term care:- Back in 1901 and 1911, also earlier, many family members were admitted to "poor farms", county homes or insane asylums. To my knowledge, there are no census records of these members of a family -- they were locked away as if they never existed. Mental illness seems to be a taboo subject – but one that needs diagnosis. - 4 - ----------------------------------- Genetically Inherited Diseases - Continued:- SUMMARY From coast to coast, members of the Expert Panel, appointed by The Honourable John Manley, will find numerous families with Genetically Inheritable Diseases. Many religious denominations now have sealed records, although a great deal of information is available about any person through Access to Information. Governmental committees have used all the personal information we are seeking. The internet is filled with many family histories, with much more available from the Mormons. It is sincerely hoped family researchers will be given the "green light" for 1911 and later census records. As a family researcher, I know the census records are very accurate, and this would have depended on information given by my grandparents and others. The Canadian census records are our one true picture of life as it really was 92 years ago, an irreplaceable history of migration, family members, occupations. I look forward to hopefully being able to view the 1911 and other records. Thanking you for your consideration, I remain, Muriel M. Davidson, U.E. 25 Crestview Avenue Brampton, ON L6W 2R8 <davidson3542@home.com> - 5 - ======================== The above is lengthy -- more another day -- I only wish the type could be reproduced as submitted. Senator Lorna Milne said she now has two books to work from, THE MYTHS OF CENSUS by Gordon Watts and GENETICALLY INHERITED DISEASES. IF readers prefer not to have the other pages posted, let me know, please. I have shown the page divisions in case readers wish to print the submission. Muriel <davidson3542@home.com>

Hi Roz. Thank you for posting your excellent letter to the Expert Panel. Like you say, you can "type pretty" if you have to. However, it is not the typing that is important, but the message that the typing conveys. I agree with Doug that you may have hit upon a point on which no one else has to date. That is why I started this mail list one year ago this month - to get subscribers to share their thoughts and ideas regarding release of historic census. Together we can achieve our goal You are a relatively new subscriber to the CCC mail list, but I consider you a valuable participant. Perhaps your example in posting your submission will encourage other listers to do likewise. There are currently 200 subscribers to this list and I would like to see postings from some of those who are "lurking" in the background. <]:-) Come on people, lets hear from you. Share your thoughts and ideas with us. Happy Hunting. Gordon A. WATTS gordon_watts@telus.net Port Coquitlam, BC ICQ # 9183352 Keep up to date on Post 1901 Census information at http://www.globalgenealogy.com/census and http://www.geocities.com/Heartland/Farm/7843/poll.html Download and circulate Post 1901 Census Petitions now from http://www.globalgenealogy.com/census/petition.htm ----- Original Message ----- From: Roz Griston <r_griston@dccnet.com> To: <CANADA-CENSUS-CAMPAIGN-L@rootsweb.com> Sent: Sunday, 30 April, 2000 7:57 PM Subject: [CCC-L] United Nations and Rights of Nationality submission re: Post 1901 Censuses Roslyn Griston April 30, 2000 Re: Post 1901 Census Release Dear Expert Panel While considering all the other documentation regarding the release of the Post 1901 Censuses. Please consider, I am a child of people listed on these censuses. I will be listed on censuses from 1953 onwards. I hereby give my permission to have census information regarding me and my minor children to be open to viewing by researchers in the future. My children have a right to know their heritage and nationality. We are descended from British roots. My four year old daughter also, has Ukrainian roots. You will be denying her, her heritage and ability to find her national origins if you choose to support the lock up or the destruction of the Post 1901 censuses. Her great grandparents and family came to Canada in the decade of the Great War. Her grandfather can not remember family details. The censuses will provide this information for her and her two half siblings. Would you deny my nationality of being chinese, even if I were born in Canada? Certainly not, simply because you would be able to look at me and know my nation of origin identity. Because, I and my children are of Northern European descent does not mean we are not interested in our nation'(s) of origin. Nor should we be denied it. Nor should any other child of Northern European descent. My maternal grandfather's family came to Canada about five generations ago. I'm still trying to find out if he is of Irish or Scottish descent. The Post 1901 Censuses will enable me to research him. He died in 1944. His wife, my grandmother died in 1976. Their only child, my mother died in 1978. I know nothing of my grandfather. Who do you suggest I ask about him? The United Nations says I and my children have the right to our national identity. I am Canadian born, living in a multi cultural country. A country, often stated as a cultural mosiac. Are my children and I of the wrong part of the mosiac to have our inherited right of nationality protected? Would you deny a First Nations person the right to say they were a Canadian born, of the Cree or Sechelt or Huron nations? I believe the following two paragraphs could successfully be argued in court to return mine and others right to access information regarding our historic nation(s) of orgin. UNITED NATIONS Convention on the Rights of the Child Article 8 1. States Parties undertake to respect the right of the child to preserve his or her identity, including nationality, name and family relations as recognized by law without unlawful interference. 2. Where a child is illegally deprived of some or all of the elements of his or her identity, States Parties shall provide appropriate assistance and protection, with a view to re-establishing speedily his or her identity. I and my children have a right to know our nationality. It is part our cultural identity. Thank you for your time and consideration with this submission. Sincerely Roslyn Griston Box 67 Granthams Landing, B.C. Canada V0N 1X0 Phone: 604.886.3430 email: r_griston@dccnet.com

Gordon: I think this fellow wants off the 1911 List as I have never heard of him or sent him a personal email. Don >Please stop sending me emails >Kindest Regards, >Wayne Gearey geareyw@cadvision.com

Roslyn Griston April 30, 2000 Re: Post 1901 Census Release Dear Expert Panel While considering all the other documentation regarding the release of the Post 1901 Censuses. Please consider, I am a child of people listed on these censuses. I will be listed on censuses from 1953 onwards. I hereby give my permission to have census information regarding me and my minor children to be open to viewing by researchers in the future. My children have a right to know their heritage and nationality. We are descended from British roots. My four year old daughter also, has Ukrainian roots. You will be denying her, her heritage and ability to find her national origins if you choose to support the lock up or the destruction of the Post 1901 censuses. Her great grandparents and family came to Canada in the decade of the Great War. Her grandfather can not remember family details. The censuses will provide this information for her and her two half siblings. Would you deny my nationality of being chinese, even if I were born in Canada? Certainly not, simply because you would be able to look at me and know my nation of origin identity. Because, I and my children are of Northern European descent does not mean we are not interested in our nation'(s) of origin. Nor should we be denied it. Nor should any other child of Northern European descent. My maternal grandfather's family came to Canada about five generations ago. I'm still trying to find out if he is of Irish or Scottish descent. The Post 1901 Censuses will enable me to research him. He died in 1944. His wife, my grandmother died in 1976. Their only child, my mother died in 1978. I know nothing of my grandfather. Who do you suggest I ask about him? The United Nations says I and my children have the right to our national identity. I am Canadian born, living in a multi cultural country. A country, often stated as a cultural mosiac. Are my children and I of the wrong part of the mosiac to have our inherited right of nationality protected? Would you deny a First Nations person the right to say they were a Canadian born, of the Cree or Sechelt or Huron nations? I believe the following two paragraphs could successfully be argued in court to return mine and others right to access information regarding our historic nation(s) of orgin. UNITED NATIONS Convention on the Rights of the Child Article 8 1. States Parties undertake to respect the right of the child to preserve his or her identity, including nationality, name and family relations as recognized by law without unlawful interference. 2. Where a child is illegally deprived of some or all of the elements of his or her identity, States Parties shall provide appropriate assistance and protection, with a view to re-establishing speedily his or her identity. I and my children have a right to know our nationality. It is part our cultural identity. Thank you for your time and consideration with this submission. Sincerely Roslyn Griston Box 67 Granthams Landing, B.C. Canada V0N 1X0 Phone: 604.886.3430 email: r_griston@dccnet.com

The 2001 Census questions are now listed on the Statistics Canada web page as a PDF file (you need the Adobe Reader to view it). I see little difference from 1996 except the question on common-law spouses includes same-sex couples as well as heterosexual couples -- there is no question on sexual orientation as rumored. < http://www.statcan.ca/english/census96/list.htm > There is one interesting addition at the end of the form where the privacy statement is always placed. There is an additional paragraph which says that "forms will be retained according to legislative requirements and stored securely". (see below) This obviously covers all bases as it may refer only to the National Archives Act since our archivist has mandated the 2001 be preserved or could be extended to cover any new legislation requiring access to census records -- our fondest hope of course. This does one thing: it dispenses with any future argument that the 2001 census shouldn't be opened because Canadians were not informed at the time of enumeration that census records would be retained. Don Nisbet < dnisbet@vcn.bc.ca > =============================================== THE LAW PROTECTS WHAT YOU TELL US (15 May 2001) The confidentiality of your census questionnaire is protected by law.All Statistics Canada employees have taken an oath of secrecy.Your personal census information cannot be given to anyone outside Statistics Canada -not the police,not another government department,not another person.This is your right. Your census questionnaire will be retained in accordance with legislative requirements and will be stored securely.You can ask to see the information you gave about yourself on your 2001 Census questionnaire after November 2001.To do this,write to the Privacy Coordinator,Statistics Canada,25th Floor,R.H.Coats Building, Ottawa,Ontario K1A 0T6. You have now completed your questionnaire.Please mail it today. Thank you for your cooperation. ============================================

To all:-- There is a real danger that, unless strong action is taken, it will be impossible for Canadians to ever have access to any more Canadian Census information. THERE MAY NEVER BE ANOTHER CENSUS RELEASED TO THE PUBLIC In 1906 the revised law concerning the census put a new emphasis on privacy, therefore the 1906 Bill to stop release of all census information from the public eye. We feel that this is unfair to the Canadian public, genealogists and historians who use this information in tracing genetic diseases, and the settling of wills and estates, and with over 7.5 million Canadians engaged in the pursuit of their family heritage - this bill must be changed. WHAT WE CAN DO? Download and get friends and neighbours to sign the Census Petition to take whatever steps to amend this Statistics Act, to allow the release of Canadian Census, after a reasonable period of time, as approved by law. Send letters to YOUR Member of Parliament requesting that they support our cause. Get involved and put a Census Poll, Banner, Link, etc. on your own website. WRITE YOUR LOCAL NEWSPAPERS!!! GET THESE PETITIONS SIGNED AND DELIVERED... DON'T WAIT TILL THE LAST MINUTE. ====================================== Thanks, Bryan -- for writing the above!!! Have YOU visited this site recently??? The counter is now at 12,712 since July 1, 1999 -- could we celebrate our first birthday with 15,000? There is a great deal at <http://www.geocities.com/Heartland/Farm/7843/poll.html> It will bookmark as Post 1901 - referring to the Canadian census. Have the speakers on -- great band music. Also, Barney Kaufman's stylized logo is available for YOUR web page -- I have it on mine and am proud of it being there! Become acquainted with this site -- it will not be disappearing WHEN we obtain release of the requested census records. This will be a coast-to-coast Canadian genealogical site for all to visit. There are connections to GenWeb sites and much, much more!!!! YOU will have to visit it to see for yourself! Also, if you wish to see photos of Senator Lorna Milne and Gerald Keddy, MP, you will find the links. Let's shock Bryan and watch the numbers climb -- above all, write your letters and get petitions signed -- the battle is not yet over! Muriel M. Davidson <davidson3542@home.com> Brampton Ontario Keep up-to-date on Post-1901 Canadian Census information at http://www.globalgenealogy.com/census http://www.geocities.com/Heartland/Farm/7843/poll.html Download and Circulate Post-1901 Census Petitions NOW from http://www.globalgenealogy.com/census/petition.htm

The following striking and outstanding declaration is presented by Wayne Cook at <http://www.waynecook.com/simcoe.shtml> THE MYTHS OF CENSUS by Gordon Watts has been mentioned before, but now we suggest you read MEMORANDUM OF LAW by Lois Sparling. Happy reading~ Muriel M. Davidson <davidson3542@home.com> HAS CANADA LOST ITS CENSUS It is time to settle this now! F. Scott Fitzgerald once said, "The test of a first rate intelligence is the ability to hold two opposing ideas in one's mind at the same time". YOU BE THE JUDGE The Wrong Road Bruce Phillips, the Privacy Commissioner would like to close the barn door on genealogical and historical research. The Honourable Senator Lowell Murray stands up in the Senate and says "To Hell with Historians". The Right Road Gordon Watts has spent hundreds of hours doing research to complete his very impressive submission to the Expert Panel on Access to Historical Census Records. To read Gordon's very impressive submission please CLICK HERE. Many thanks to Gordon Watts for allowing me to post the submission at my site. "Permission to forward without notification is granted". Lois Sparling is a Barrister & Solicitor in Alberta, Canada. Please read her MEMORANDUM OF LAW and why she thinks: In her opinion, an application in the Federal Court for a writ of mandamus compelling the National Archivist to release the individual returns from the 1906 census of the western provinces would have a good chance of success.

COVER:- (type much larger) GENETICALLY INHERITED DISEASES Submission to the Expert Panel on Release of Historic Census Records Prepared by MURIEL M. DAVIDSON 25 Crestview Avenue Brampton, ON L6W 2R8 April 20, 2000 ============================== GENETICALLY INHERITED DISEASES CONTENTS Personal Family Diseases Multiple Sclerosis ........... 2 Brain Tumors ............... 3 Macular Degeneration ........ 3 Cancer ....................... 3 Arthritis and Osteoporosis .. 3 Diseases by way of Adoption . 4 Alzheimer’s Disease ................. 6, 7 Depression ......................... 8 - 13 Strabismus ......................... 13 Diabetes and Prolonged Q-T Syndrome. 14, 15 Fabry’s Disease .................... 16, 17 Unknown to date .................. 18 Amyotrophic Lateral Sclerosis (ALS). 19 - 21 Breast Cancer ...................... 22 ========================================== Letter:- 25 Crestview Avenue Brampton, Ontario L6W 2R8 April 20, 2000 Expert Panel on Access to Historical Census Records 25-B, R.H. Coats Building Ottawa, Ontario K1A 0T6 Esteemed Members of the Expert Panel: Re: Genetically Inherited Diseases Submission Many family researchers have found potential "TIME BOMBS" in the familial data they have collected. I have been one of these researchers, and suggested a combined submission about Genetically Inherited Diseases. Many have submitted suggestions, and I have tried to include a cross-section of known inherited diseases. We have used all sources of proven and true research papers, and all agree the only true picture of the lives of our ancestors is within the Canadian census records. We are very anxiously and hopefully awaiting the release of the 1911 records in 2003 – we only wish we would be able to view later census records within a short time for medical reasons. Families with inheritable diseases/genes live from day to day – one never knows when the disease will pounce again … that is the way we feel. The internet has provided much information about ALS, Q-T Syndrome, Paget’s Disease, Alzheimer’s, Osteoporosis, Depression, Diabetes and others – but it is the daily personal living in fear, not knowing how far back the defective gene was in action. Personally, I was fortunate to have family history from my grandfather; he gave me information as he knew it, and I have found he was correct. Ironically, I am unable, at the present time, to learn the information my grandfather provided for the 1911 census. Citizens of Canada, plus many with Canadian roots, anxiously await your report. We sincerely hope all members of the Expert Panel will be in favor of census release, not just for family trees, but for important medical records. Being able to provide our doctors with substantiated records would save long waiting periods prior to a diagnosis, as happened to my youngest brother, now 61, a victim of Multiple Sclerosis for 37 years. Many thanks for working as members of this very important committee, Sincerely, Muriel M. Davidson <davidson3542@home.com> 1-905-451-3542 ============================ Cover, Contents and Letter of my submission to the Expert Panel. Sincerely hope it is, as Senator Lorna Milne stated, the "straw that breaks the non-release of our Canadian census records". Apologies for what happens after the memo was Sent -- if anyone wishes to save it, simply Send it back to yourself -- line up various parts, and print. Other pages to follow. Muriel M. Davidson <davidson3542@home.com> Check for THE MYTHS OF CENSUS by Gordon Watts at:- <http://www.geocities.com/Heartland/Farm/7843/poll.html> <http://www.waynecook.com/simcoe.shtml>

There is a correction re the Wayne Cook URL -- please bookmark. The one previously given does take a reader to THE MYTHS OF CENSUS, the corrected URL is better. Many thanks, Wayne! ============================================ To all listers:- Many genealogists, historians and ordinary family researchers like myself use the Canadian census records for verification of family facts. In many cases, these records are the only source other than wills and deeds, as many denominational records are sealed. In many cases, these have not been kept or have been burned. Gordon A. Watts has spent many hours researching THE MYTHS OF CENSUS, a very professional bit of research for all to study. Senator Lorna Milne has already used a great deal of Gordon Watts' research in her recent speeches, which you will find printed in Hansard. This is one way of keeping the census matter alive while we wait for the report by May 31, 2000 from the appointed Expert Panel. For those who want to learn more about THE MYTHS OF CENSUS, all except the copyright data has been posted on two sites, to date. LCCCC <http://www.geocities.com/Heartland/Farm/7843/poll.html> This URL bookmarks as Post 1901. Go to THE MYTHS OF CENSUS by Gordon A. Watts. This will take you to <http://www.waynecook.com/simcoe.shtml> Wayne Cook has this posted on the Simcoe County GenWeb page Tune into the Global Genealogy's Gazette -- print it if you like, as THE MYTHS OF CENSUS is lengthy, then read at leisure. <http://GlobalGazette.net/gazce/gazce53.htm> Happy reading!! Any comments??? We would love them!!! Send to either of the following: Muriel M. Davidson <davidson3542@home.com> Gordon A. Watts <gordon_watts@telus.net>

To all listers:- Here are a few SUGGESTIONS to keep "the elected ones" busy and also to let them know we are still asking to have the Post-1901 Canadian census records released. Write/type a one-page letter which will be suitable for all Members of Parliament of the House of Commons. Allow space for name and riding of the Member, and the address: House of Commons, Parliament Bldgs., Ottawa ON K1A 0A6 Postage will be FREE. Go to <http://www.globalgenealogy.com/census> Should any names of Members of Parliament have BLUE question marks, copy down the names, a few at a time, complete with riding name. Turn on your word processor or whatever you use -- plus the printer -- type in the name of the first one, PRINT, then repeat the process for as many as you wish at one time. You MUST sign your name and full address. DO NOT USE E-MAILS ---- these are only counted, letters are read. An actual decision of release of the census records will be made in the House of Commons, so a HUGE lot of AGGRAVATION is needed to keep them reminded we are still here. Concentrate on LIBERAL members -- this is the majority of members and it is strange, they all think alike! The agitators are in other groups, so we need to send them letters as well. My system is to watch CPAC and send an e-mail, casually mentioning CENSUS, if I have liked any happenings of the day. I have had replies from many - and they mentioned census!!!! The appointed Expert Panel will shortly be releasing its report -- for our guidance and future activity. Let's plan on giving the "blue question mark" Members of Parliament a huge paper WELCOME BACK following the Easter recess. Several listers are already sending notes to Members -- but not E-MAILS. These are "counted and stacked according to data". Muriel M. Davidson <davidson3542@home.com> Brampton, Ontario Keep up to date on Post 1901 Census information at http://www.globalgenealogy.com/census Look for THE MYTHS OF CENSUS by Gordon Watts at http://www.geocities.com/Heartland/Farm/7843/poll.html Download and circulate Post 1901 Census Petitions now from http://www.globalgenealogy.com/census/petition.htm

To all:- I am still receiving memos re Genetically Inherited Diseases, although this submission has already been forwarded. These late ones will be kept in a special file -- we might need them in the future after the Expert Panel report of May 31, 2000. I included a cross-section of inheritable diseases, with a CONTENTS list:- Multiple Sclerosis / Brain Tumors / Macular Degeneration / Cancer / Arthritis & Osteoporosis (Paget's Disease) / Diseases re Adoptions / Alzheimer's Disease / Depression / Diabetes & Prolonged Q-T Syndrome / Fabry's Disease / Unknown / ALS / Breast Cancer There was also one inheritable gene: Strabismus (eyes) Of interest to Nova Scotians, the research for Fabry's Disease was conducted on Tancook Island -- a small island community, constant residency. DEPRESSION was of great interest -- memos from United States and Scotland, plus my own personal statement re clinical depression. Turn on your computer search engine -- you will learn a great deal, as I did. Many thanks for assisting -- it was fun! Muriel M. Davidson <davidson3542@home.com>

To all listers:- Many genealogists, historians and ordinary family researchers like myself use the Canadian census records for verification of family facts. In many cases, these records are the only source other than wills and deeds, as many denominational records are sealed. In many cases, these have not been kept or have been burned. Gordon A. Watts has spent many hours researching THE MYTHS OF CENSUS, a very professional bit of research for all to study. Senator Lorna Milne has already used a great deal of Gordon Watts' research in her recent speeches, which you will find printed in Hansard. This is one way of keeping the census matter alive while we wait for the report by May 31, 2000 from the appointed Expert Panel. For those who want to learn more about THE MYTHS OF CENSUS, all except the copyright data has been posted on two sites, to date. LCCCC <http://www.geocities.com/Heartland/Farm/7843/poll.html> This URL bookmarks as Post 1901, with present reader number 12458. Go to THE MYTHS OF CENSUS by Gordon A. Watts. This will take you to <http://www.waynecook.com/census.html> Wayne Cook has this posted on the CAN-ONT-SIMCOE-L@rootsweb.com list Tune into the Global Genealogy's Gazette -- print it if you like: <http://GlobalGazette.net/gazce/gazce53.htm> Happy reading!! Any comments??? We would love them!!! Send to either of the following: Muriel M. Davidson <davidson3542@home.com> Gordon A. Watts <gordon_watts@telus.net>

FYI -- Gordon -------------------------------- Dear Ms. McDonough. As an individual who has voted for the NDP for most of my life, I am writing at this time to express my extreme disappointment with your response to my previous email. Being as the main purpose of my previous email was to provide to you, as attachments, the files containing my submission to the Expert Panel on Access to Historic Census records I find it strange that your response would be to inform me of the existence of that Expert Panel. If you had read my submission you would not be sending me a response quoting Mr. Phillips' views on the "promise" that does not exist. The "canned" response that was sent to me is word for word identical to others that I have seen sent to others who have enquired of you regarding this subject. It is obvious to me that you have not read my original email, nor the attachments thereto, and likely have not read any other email or letter sent to you regarding Access to Historic Census. It is equally obvious that your office staff did not bother to read my message either, likely just looking at the subject line and sending out your standard "canned" response to any enquiry regarding this subject. Had they bothered to read my previous message they would have seen that your standard "canned" response was not appropriate. As the House is currently in recess for the Easter break your staff has obviously not passed my original email to you. Perhaps on receipt of this message they will see fit to do so. In my original email I asked a specific question on how you would vote on a Bill to allow access by the Public, after a reasonable period, of Post 1901 Census records. I would appreciate a response to that question. The tone of your "canned" response leads me to believe that you now oppose the access by the Public to Post 1901 Census records after as reasonable period as provided for in Regulations attached to the Privacy Act. This would appear to be a change of position since your email response of 07/13/99 to Mr. Callard in which you stated "I am pleased to inform you of my support for the Global Gazette's Post 1901 Census Project. Former NDP Industry Critic, Chris Axworthy, as a member of the House of Commons Standing Committee on Industry, has written to the Minister of Industry calling for legislative provisions for the release of census records after a reasonable period of time, such as 92 years." As the individual responsible for the content of the Global Gazette Post 1901 Census Project web pages and the MP's Scoreboard and Correspondence Logs, should I not receive affirmation of your previous position in favour of access I will be changing your gold tick of support to a red cross of opposition. I will also be giving serious consideration regarding who I should be voting for in the next election. Access to Historic Census record is a vital issue to an estimated 7.5 Million plus Canadian citizens (and voters). It is because of the efforts of a very small proportion of those citizens that the Expert Panel was appointed to make recommendations to address the concerns of those citizens. It is to be hoped the report of the Export Panel will recommend release of Census on the same basis as those previously released. Should that not be the case there are lawyers who feel that a challenge in the courts would successful in obtaining access. We are committed to continuing our campaign until we are successful. I would ask that you personally read my previous email and the attachments containing my submission to the Expert Panel. I would then welcome any questions or comments you might have regarding them. Thank you. Gordon A. WATTS 1455 Delia Drive Port Coquitlam, BC V3C 2V9 Tel. (604) 942 6889 Fax. (604) 942 6843 ----- Original Message ----- From: McDonough, Alexa - M.P. <McDonough.A@parl.gc.ca> To: 'Gordon A. WATTS' <gordon_watts@telus.net> Sent: Tuesday, 25 April, 2000 12:00 PM Subject: RE: Access to Historic Census Records Thank you for your email message concerning the release of data from the 1911 Census. The information contained in census documents is of great use to genealogists and historians. The feeling of the NDP Caucus has been that this issue demands a balance be struck between confidentiality and reasonable access. However, the need to restrict access by Canadians to the post-1901 census records is highly questionable, particularly when there is much greater availability of census materials in the US. The federal Privacy Commissioner, Bruce Philips, has announced his strong opposition to release of the data, saying that "people who give information to the government under penalty of law on an unqualified promise of confidentiality are entitled to expect that that trust will be honoured." Mr. Philips also speaks of the right of Canadians to have control over their own information, rather than "people with a vested interest" using and making decisions about that information. In these days of limited privacy and control of our own information, his point is well taken. In response to both calls from historians and amateur genealogists and the concerns of the Privacy Commissioner, the Minister of Industry has appointed an "Expert Panel on Access to Historical Census Records." A copy of the news release and terms of reference are available at http://www.statcan.ca/english/census96/interm.htm . If you wish to make your views known to the Panel on this issue, please feel free to send an email to: expert.panel_comite.experts@statcan.ca For the time being the NDP Federal Caucus is waiting for the decision of the Panel which has been asked to report to the Minister by May 31, 2000. Thank you for sharing your views on this matter with me. Sincerely, Alexa McDonough, MP for Halifax Leader, Canada's New Democrats http://caucus-npd.ndp.ca/ -----Original Message----- From: Gordon A. WATTS [mailto:gordon_watts@telus.net] Sent: April 24, 2000 1:40 PM To: Undisclosed-Recipient:; Subject: Access to Historic Census Records To all Members of Parliament I give greetings. By way of introduction I will advise that I am one of the leaders of a campaign on the Internet seeking Public access to Post 1901 Census records after a reasonable period of time, (currently 92 years following collection,) as provided for by Regulations pertaining to the Privacy Act of Canada. I am sure that over the past two years, all Members of Parliament have been contacted by their constituents regarding this matter. All 301 MPs have been sent e-mail and letters asking (1) their willingness to prepare and present a Bill to obtain access to Post 1901 Census records after a reasonable period, and (2) how they would vote on a Bill to allow access to Post 1901 Census. I have seen many responses from MPs and these have been varied. Several voiced immediate support for access to Historic Census records while a few stated opposition to access. Others, those who bothered to respond to questions regarding access to Historic Census, sent answers giving no clue as to their position on this matter. Many simply acknowledged receipt of the letter, stating "your concerns have been noted" and "have been passed to Industry Minister John Manley" or Statistics Canada. By far the majority of MPs did not see fit to respond in any way to these questions. Those MPs who are "fence-sitters" or who stated opposition to access to Census records had one thing in common -- they all relied heavily on statements released by Statistics Canada regarding a "promise" of "never ending confidentiality" that was supposedly given by the 1905 government of Sir Wilfrid Laurier. Most could not be bothered to respond in their own wording but quoted in part, or in entirety, from those statements released by Statistics Canada. One in particular titled "Access to 1911 and other Post-1901 Census Records" was widely quoted. Obviously those MPs responding in this manner accepted at face value what Statistics Canada and Privacy Commissioner Bruce Phillips have said regarding this "promise". They have made no attempt to seek out the truth of the matter. I have asked both Statistics Canada and Privacy Commissioner Bruce Phillips to "show me the promise" upon which their position of non-disclosure is entirely based. To date they have been unable to do -- simply referring me to the Statutes of 1905/1906, and Instructions to Census Officers and Enumerators of Census for that time period. I can state categorically that at no place in these Statutes and Instructions, nor in any Statues or Instructions since then, is there any mention of a "promise" that confidentiality of information given by respondents to Census will last "forever". The "promise" does not exist. On 12 November 1999 an Expert Panel to study Access to Historic Census Records was appointed with a mandate to bring down a report containing recommendations by 31 May 2000. In an effort to inform and educate, or at least to cause MPs to think about the issue, I have attached to this message the files containing my printed submission to the Expert Panel. Titled "The Myths of Census", this submission is the result of considerable research of the pertinent sources of information relating to the matter at hand. These sources, among others, include: All Statutes relating to Census and Statistics from 1870 to the present . Most Instructions to Officers and Enumerators of Census from 1871 to 1941. Extracted Debates of the House of Commons and the Senate for 1879, 1905 and 1918 Many Proclamations and Orders in Council published in The Canada Gazette Extract from Archivaria 45 (Fall 1998) -- "Counting the Archives In: The appraisal of the 1991 Census of Canada" by Jean-Stephen Piche and Sheila Powell Extract from Canadian Public Administration (Vol. 20, No. 3, pp 481-498) -- "Access to historic census data in Canada: a comparative analysis." by David H. Flaherty Report of the Australian House of Representatives Standing Committee on Legal and Constitutional Affairs titled "Saving Our Census and preserving our history (May 1998)" I urge each MP to read my submission to the Expert Panel, the submission of the Canadian Historical Association which is posted on the web pages of Statistics Canada, and any other submissions to which you might have access. Read these submissions, and think about the issues involved. With the report of the Expert Panel on Access to Historical Census due by the end of May it is likely that there will soon be a Bill relating to Access of Historic Census records to vote on. In this regard I would again ask each of you the following question: Would you, as a Member of the House of Commons of the Parliament of Canada, having been placed in that position by the voting citizens of your Constituency, vote FOR or AGAINST a Bill supporting release to the Public of Post 1901 Census Reports after 92 years, starting with the 1906 Census? I would welcome any comments or questions you might have regarding my submission to the Expert Panel. To the Francophone Members of Parliament I extend my apologies for not sending this message and the attached files in the French language. I regret that I am not bilingual and neither read, nor write, French. Thank you. Gordon A. WATTS gordon_watts@telus.net Port Coquitlam, BC ICQ # 9183352 Keep up to date on Post 1901 Census information at http://www.globalgenealogy.com/census and http://www.geocities.com/Heartland/Farm/7843/poll.html Download and circulate Post 1901 Census Petitions now from http://www.globalgenealogy.com/census/petition.htm

Greetings All. This afternoon I sent all Members of Parliament for whom we have email addresses the following message. I attached to this message the files for my printed submission to the Expert Panel on Access to Historic Census records. In doing this it is my hope that I can inform and educate, or at least give them something to think about. Happy Hunting. Gordon ---------------------------------------------- To all Members of Parliament I give greetings. By way of introduction I will advise that I am one of the leaders of a campaign on the Internet seeking Public access to Post 1901 Census records after a reasonable period of time, (currently 92 years following collection,) as provided for by Regulations pertaining to the Privacy Act of Canada. I am sure that over the past two years, all Members of Parliament have been contacted by their constituents regarding this matter. All 301 MPs have been sent e-mail and letters asking (1) their willingness to prepare and present a Bill to obtain access to Post 1901 Census records after a reasonable period, and (2) how they would vote on a Bill to allow access to Post 1901 Census. I have seen many responses from MPs and these have been varied. Several voiced immediate support for access to Historic Census records while a few stated opposition to access. Others, those who bothered to respond to questions regarding access to Historic Census, sent answers giving no clue as to their position on this matter. Many simply acknowledged receipt of the letter, stating "your concerns have been noted" and "have been passed to Industry Minister John Manley" or Statistics Canada. By far the majority of MPs did not see fit to respond in any way to these questions. Those MPs who are "fence-sitters" or who stated opposition to access to Census records had one thing in common -- they all relied heavily on statements released by Statistics Canada regarding a "promise" of "never ending confidentiality" that was supposedly given by the 1905 government of Sir Wilfrid Laurier. Most could not be bothered to respond in their own wording but quoted in part, or in entirety, from those statements released by Statistics Canada. One in particular titled "Access to 1911 and other Post-1901 Census Records" was widely quoted. Obviously those MPs responding in this manner accepted at face value what Statistics Canada and Privacy Commissioner Bruce Phillips have said regarding this "promise". They have made no attempt to seek out the truth of the matter. I have asked both Statistics Canada and Privacy Commissioner Bruce Phillips to "show me the promise" upon which their position of non-disclosure is entirely based. To date they have been unable to do -- simply referring me to the Statutes of 1905/1906, and Instructions to Census Officers and Enumerators of Census for that time period. I can state categorically that at no place in these Statutes and Instructions, nor in any Statues or Instructions since then, is there any mention of a "promise" that confidentiality of information given by respondents to Census will last "forever". The "promise" does not exist. On 12 November 1999 an Expert Panel to study Access to Historic Census Records was appointed with a mandate to bring down a report containing recommendations by 31 May 2000. In an effort to inform and educate, or at least to cause MPs to think about the issue, I have attached to this message the files containing my printed submission to the Expert Panel. Titled "The Myths of Census", this submission is the result of considerable research of the pertinent sources of information relating to the matter at hand. These sources, among others, include: All Statutes relating to Census and Statistics from 1870 to the present . Most Instructions to Officers and Enumerators of Census from 1871 to 1941. Extracted Debates of the House of Commons and the Senate for 1879, 1905 and 1918 Many Proclamations and Orders in Council published in The Canada Gazette Extract from Archivaria 45 (Fall 1998) -- "Counting the Archives In: The appraisal of the 1991 Census of Canada" by Jean-Stephen Piche and Sheila Powell Extract from Canadian Public Administration (Vol. 20, No. 3, pp 481-498) -- "Access to historic census data in Canada: a comparative analysis." by David H. Flaherty Report of the Australian House of Representatives Standing Committee on Legal and Constitutional Affairs titled "Saving Our Census and preserving our history (May 1998)" I urge each MP to read my submission to the Expert Panel, the submission of the Canadian Historical Association which is posted on the web pages of Statistics Canada, and any other submissions to which you might have access. Read these submissions, and think about the issues involved. With the report of the Expert Panel on Access to Historical Census due by the end of May it is likely that there will soon be a Bill relating to Access of Historic Census records to vote on. In this regard I would again ask each of you the following question: Would you, as a Member of the House of Commons of the Parliament of Canada, having been placed in that position by the voting citizens of your Constituency, vote FOR or AGAINST a Bill supporting release to the Public of Post 1901 Census Reports after 92 years, starting with the 1906 Census? I would welcome any comments or questions you might have regarding my submission to the Expert Panel. To the Francophone Members of Parliament I extend my apologies for not sending this message and the attached files in the French language. I regret that I am not bilingual and neither read, nor write, French. Thank you. Gordon A. WATTS gordon_watts@telus.net Port Coquitlam, BC ICQ # 9183352 Keep up to date on Post 1901 Census information at http://www.globalgenealogy.com/census and http://www.geocities.com/Heartland/Farm/7843/poll.html Download and circulate Post 1901 Census Petitions now from http://www.globalgenealogy.com/census/petition.htm